bayerngirl
Cathlete
Hi,
I had an appointment with my rheumatologist today. My blood counts are in the dangerous low level, the He is taking me off the Actemra injections. I am going to be on infusions. I am waiting for the infusing center to schedule an appointment. The infusion will take 4 + hours every 4 weeks. I could get a nurse come to the house to give me the infusions. I feel safer doing it in a hospital setting in case something goes wrong, you never know? I hate this disease, it‘s kicking my butt for the last few month. Meds are not working. There are no medicine approved for RP. Whatever sticks! I need a break. I also found out that my knees are related to RP not old age. That explains why I have lost knee cartilage. I just hope this all will not interfere with Cathe‘s RT
I was going to do a weight workout today. We came home later this afternoon. I did another dance workout.
Debbie - good thing you stayed indoors. Thank you. I hear you on holding on to things. Trust me once it out of the house you will not miss it. Don‘t use it or will never use it, get rid of it. I haven‘t stopped for the same reason you mention to Cookie.
Cookie - my aunt is in Samia (?) not far from where we pick up the RV. We are super excited about the RV. Thanks about the birthday. Great job on you walks.
Good night.
I had an appointment with my rheumatologist today. My blood counts are in the dangerous low level, the He is taking me off the Actemra injections. I am going to be on infusions. I am waiting for the infusing center to schedule an appointment. The infusion will take 4 + hours every 4 weeks. I could get a nurse come to the house to give me the infusions. I feel safer doing it in a hospital setting in case something goes wrong, you never know? I hate this disease, it‘s kicking my butt for the last few month. Meds are not working. There are no medicine approved for RP. Whatever sticks! I need a break. I also found out that my knees are related to RP not old age. That explains why I have lost knee cartilage. I just hope this all will not interfere with Cathe‘s RT
I was going to do a weight workout today. We came home later this afternoon. I did another dance workout.
Debbie - good thing you stayed indoors. Thank you. I hear you on holding on to things. Trust me once it out of the house you will not miss it. Don‘t use it or will never use it, get rid of it. I haven‘t stopped for the same reason you mention to Cookie.
Cookie - my aunt is in Samia (?) not far from where we pick up the RV. We are super excited about the RV. Thanks about the birthday. Great job on you walks.
Good night.