When a headache isn't a headache aka: AVM (long)

[RapidBreath]

Hi Debbi!

What a tremendously lucky little girl you have! I am so glad she came out here to CA for treatment. My cousin was treated at Stanford Lucille Packard for her bone cancer. Its a great place.

Frankly. That was really close. If you hadn't been there. Or, if she had been on her horse at the time. It could have been a different story, I think your daughter is blessed.

 

[LastTango]

Any time I hear of someone losing control of one side of the body, I immediately think STROKE. I'm surprised the doctor didn't do a CT to begin with, but it IS unusual to see strokes in young people. Glad she will be ok.

 

[RunninTeach]

It wasn't til I was nearly at the end of the thread that I realized the original post is dated November 2004. What a harrowing experience and an absolutely amazing young girl. I hope she is still doing well!

Sparta802, best of luck to you as you recover!

 

[Stephanie0523]

Debbie,
That must have been the scariest thing in the world. I think you handled the situation perfectly. Don't have any mom guilt for waiting to take her back to the doc. I would have thought the meds caused the nausea too. Most importantly, you have acted as your child's advocate and insisted on second opinions. And you've shared a valuable lesson with us! I'll be praying for you and your daughter!!!

 

[Sunshine1528]

Glad all is going well for your daughter ! Great choice to go to Stanford. All 3 of my kids were born there . . . the oldest broke his femur when he was 2 and they did such a great job that after 2 months of traction and cast, a week after the cast was off he literally ran down the hallway without a limp !

He was in the children's ICU for a week and a half and many very sick children were his roommates. They took such great care of him and allowed us to stay in his room 24/7. We had a 9 month old at the time and they let him stay around for a great deal of time too.

I'll never forget the great treatment, even 25 years later . . . kudos for getting a second opinion and thank goodness you were able to connect with such great physicians !

Very interesting the way they are going about tackling the problem too - I love their latest and greatest ways of dealing with things. My son did not have pins in his knee to hold his legs up in the air, instead they taped them and made a loop at the end of his foot so they could just "hook" them up in the air. So much less invasive and much more comfortable for such a young patient who shouldn't have broken such a large bone in the first place.

Best to all of you through this tough time - <hugs> to your courageous daughter !