Update on meowracer's please pray for me

meowracer

Cathlete
Well, basically, still no answers. Thank you so much for all of your responses, thoughts, prayers, and well wishes! They have helped me keep my sanity :)

Here is part of the report. I include all of this in case somebody reading has experience with something at least related. Otherwise, just ignore this part!

Basically, the MRI shows: There is focal prominence of the right jugular bulb (12mm) with strong enhancement. There is a single nonspecific T2 bright signal focus in the right periventricular region. This is consistent with microvascular change versus gliosis although demyelinating disease could appear similarly. (The rest was all normal).

IMPRESSION
Focal promiennce of the right jugular bulb and enhancement as described above, that may represent a vascular malformation, meningioma, schwannoma or glomus jugulare tumor. Please correlate clinically and follow up with MRV or direct angiogram as indicated.

Tomorrow I have the MRV done of the head and neck and next week, see an ENT to see if he knows what it is. The doctor basically cannot say. She had her colleague look at it to no avail as well. Could be congenital, a tumor/growth on the jugular, or something inner ear is the best they can give me now. I guess it is good news that they don't recognize it...I guess - I hope!

Anyway, there you have it. It is an incidental finding and nothing to do with headaches. Please keep me in your prayers and thoughts, and positive vibes ;) Thank you! I will continue with updates as I get them myself. For now, I feel just great and am trying to keep the stress/worry under wraps, pretending that I have had this my entire lifetime and will when I die somewhere around 107 years old of very old age and nothing else :7
 
Yeah, it's usually a good sign when they can't identify it right away. Nothin' scary. :)

Hang in there. I'm still sending you much courage, strength and luck. <3
 
Shana, you are so awesome, of course you are in my thoughts and prayers...and here are some ((HUGS))too!:)
 
Shana--thanks for updating us. I'll be praying wisdom for your doctors as you undergo further testing and peace for you.

continue to let us know how it's going.

Maggie
 
Thank you all, so much! I got to feeling nervous and worried again and came back to read these posts this morning and felt better. Today I will have the MRV done. The test itself doesn't scare me - it is what rides on the results that does! Positive thoughts, positive thoughts, positive thoughts... I did have an appt set with my doctor for my thyroid today. It was set about a month ago, and this morning, it dawned on me to take these results to him - good timing, I figure. He is internal medicine so he should be able to read the record with some sort of knowledge background. He read it, said, "Hmmmm, a most unusual finding indeed!" He said that the possibility of it being anything at all is remote at best. Most likely, it is the way God made me. Well, that made me feel better, certainly, but since the neurologist isn't sure, nor were her colleagues, until I have it as a definite, I will always have that worry. For now, though, I am taking what he said and running with it so I can make it through the waiting with some sort of sanity. I will keep you posted, and I certainly appreciate all of the many prayers, positive thoughts, hugs, good vibes, well wishes...more than you could possibly know. For me, healthwise, this is the scariest thing that has ever happened to me and I am a worrier by nature so I know, without a doubt, that you super group of people are helping me get through this! It just means more than words can say. As soon as I know more, I will let you know.
 
I am just like you Shana, a worrier! I will pray that you DON'T worry as much! It is only human nature to worry when we don't know what is wrong. I am still keeping you in my prayers. Thanks for keeping us posted. BIG and hugs to you!



http://www.PictureTrail.com/gid8692709


Your-Friend-In-Fitness, DebbieH (AKA "Den Mother Debbie") http://www.clicksmilies.com/s0105/aktion/action-smiley-066.gif[/img] If You Get The Choice To Sit It Out Or Dance, I Hope You DANCE!
 
I am back from the test. It wasn't too bad - just uncomfortable to be that still for so long. In this test, if you move the smallest bit, they have to start the whole thing over. In an MRI, they just repeat the last few minutes. The doctor wants the results ASAP so they are getting them to her tomorrow. When the tech told me that, I grilled him to be sure he hadn't seen something that needed immediate attention! (See, I am such a worry wart.) He assured me no, that the doctor had requested that. Then I remembered the doctor wanted me to be worked in rather than having to wait. OK, so I go to worrying again. Then I reminded myself that she has no clue what it could be, and my doctor today felt very positive that it is a God given special part of me...Oh, the waiting. And then I got the dumb idea to look at the CD of the thing today. Of course, I have no idea what I am looking at. I thought it all looked just fine :)
 

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