may you dance like no one's watching...

[farmgirl]

...and live each day to it's fullest! Two little lessons I have learned from a very dear friend and patient who unfortunately lost her battle to ALS (Lou Gehrig's disease). Even the last time I "spoke" with her (she's been limited to a dry erase board for about 5 months) last Tuesday she was still cracking jokes. Whenever I see or hear someone b**ching and moaning about the little things in life, I will remember Lori and her bravery in the face of this horrible disease and realize that life is precious so soak up every drop!
sorry to be all philosophical and stuff...but it was so sad to see a friend go...we certainly owe it to Lori to search for a cure and celebrate like there's no tomorrow!
take care
julie

 

[bitmover]

Julie, thanks for your reminder, and I'm very sorry about your friend. I lost a co-worker to ALS quite a few years ago -- it is a tough thing to watch someone go through.

 

[jonahnah]

Julie,

I'm so sorry about your friend's passing. ALS is an awful disease and I hope a cure is found soon. ((((((((hugs))))))))))

Thank you for posting those reminders about finding joy and squeezing fun out of life despite all the challenges it can throw at us.

 

[Beavs]

Words to truly live by....thanks for the reminder.

 

[fit_fairy]

Nice message, thanks. Sorry for your loss

 

[workoutaholic]

Sorry about your friend, and thanks for the post. Definitely words of wisdom.

 

[Cosmo Mom]

My sympathies to the loss of your friend.

Anyone fighting this disease can prove as an inspiration to us all just how much we will fight to live our lives.

Let us all be grateful for the things we take for granted every day.
Thanks for the reminder.

 

[My2girls]

Thank you for sharing that with us and for the reminder! Unfortunatley, I need that reminder a lot.

 

[SteppingFool]

Sorry for your loss. Sometimes we do get wrapped up in a little things that we forgot what really matters. Thanks for the reminder.

 

[caseysmomgo]

Julie, I'm so sorry for the loss of your friend. The message in your post is something that everyone needs to be reminded of...thanks for sharing.

 

[Gayle]

{{{{{Julie}}}}} Thanks for posting that.

We lost my aunt to ALS last year. It was heartbreaking.

 

[punka274]

Julie, i loved the message in your post and im so sorry to hear about your friend Hugs to you!

 

[wendy loo]

I am so, so sorry to hear about your friend. ALS is such a horrible disease--we either donate or Walk to DeFeet ALS each year. Thank you for your post.

If anyone has a friend or family member with ALS now or in the future, please look into augmentative communication devices. There are eye gaze systems available now that allow patients to communicate simply by looking at certain points on a screen. For a person who has lost control of her voice and hands, this can be a real gift.

Wendy