Uterine Fibroids

tneah

Cathlete
A quick question, I have huge fibroids that cause heavy, heavy periods and anemia. Wondered if anyone else here has gone through this and what did you do? My gyno said she would have the uterus removed, the only way to make sure they don't come back. They do not take your ovaries, so no early menopause.

I am not interested in bearing children (I am 42), so not sure what course of action to take?
 
Have you asked your doctor about Novasure? I don't know much about it but my Gyno is one of the doctor's that teaches this method to other doctors. Maybe get some info on it.
 
Hi tneah,

My mom went through the same thing exactly about 5 years ago-she was 47 at the time. She became so anemic, she almost had to have a blood transfusion. She had a complete hysterectomy-ovaries, too-no more kids and getting close to menopause anyway. She says it was the best thing-no more pain, bleeding, feeling crazy tired, etc. I would check out all your options, too. Good luck!
 
Hi Tneah--

Yep--I went through years of this and was taking a ton of iron to make up for the blood loss. Very anemic, and there were days when I thought I was passing quarts and clots of blood at a really alarming rate. I had one enormous fibroid the size of a grapefruit according to my doctor. I finally (age 57) decided to have a hysterectomy, but I did it by laparoscopy and was back to exercising in a week. I still had my ovaries, but after the operation--maybe because of my age--I had terrible hot flashes and started taking loestrin to keep them at bay. Definitely ask about laparoscopy, though, because the recovery from the oldfashioned hysterectomy is pretty long.

Good luck!

garance
 
Have you asked your doctor about Novasure? I don't know much about it but my Gyno is one of the doctor's that teaches this method to other doctors. Maybe get some info on it.

I had the Novasure done a year and a half ago. Mine was for heavy periods. I didn't have fibroids. Not sure if it works for that, but it is definitely worth asking about. It's much easier than a hysterectomy. I'm happy to answer any questions about my experience with the Novasure if you have any.
 
My SIL had to have a blood transfusion so a hysterectomy was absolutely necessary.

I was told I needed my uterus removed. The surgeon told me that he would leave my ovaries so I would go through natural menopause. Like with anything, I researched everything. There is a site filled with great info called Hyster Sisters.
I researched and found that about 50% of the cases when the ovaries are left, they die within a year from lack of blood supply. You need to know that removing your uterus can lead to your bladder falling too, so you would eventually needing a sling. Some surgeons use a sling when they perform a hysterectomy.

My SIL did not get a sling, and has to wear pads because her bladder leaks all the time. If you need a bladder sling, you will need to consider what type of sling the surgeon uses. Some use synthetic, some use bovine(natural). I've already decided if I ever need a bladder sling, I want bovine. Synthetic can cause real problems over time.


Tneah, I'm not trying to frighten you. Just research all your options so you can have a list of questions to ask your surgeon, or for interviewing surgeons.

As for me, I went for a second opinion and the second surgeon told me that I did not need a hysterectomy. It would have not solved the problem I was having. Pretty scary. :eek:
 
Hey Tneah, sweetie! Don't have any advice to offer, but just wanted to send you {{{{HUGS}}}}!! Sorry you're having to go through this!!!
 
I had an partial hysterectomy done in 10/06 when I was 43. It was done for uterine fibroids that caused such heavy bleeding, I basically lost a week of my life every month. (I had a D&C done 2 years prior to the hysterectomy, which help for about 3 months. Then the fibroids grew back and yuck resumed.) Despite my torrential flow and plum-sized clots, I was only mildly anemic. Happily, my insurance covered the procedure without question.

Anyway, I researched the bejesus out of everything! This is what I had done: Abdominal incision, uterus taken out, kept my ovaries AND my cervix. Keeping your cervix is supposed to help prevent bladder issues like someone else mentioned. If you have the hysterectomy vaginally done, you cannot keep your cervix.

My doctor was not trained to do laproscopic surgery, and I wanted to keep my cervix so that left me with abdominal incision. Yes, I could have gone to another doctor over 45 minutes - 1 hour from where I live, but I trusted my doctor completely having been her patient for over 6 years at that point. She had done hundred and hundreds of these operations so she was more than competant. No way I was going to have major surgery with a doctor I never met before, had no relationship with and no prior knowledge of my medical history other than a medical form.

The advantage of the abdomimal hysterectomy is every medical student learns to do them. They are pretty straightforward. You don't have to worry about the doctor knicking your bladder as they maneuver inside with the tiny razor sharp instruments or potentially missing a small piece of your uterus during the removal process. The doctor also gets a really good look at your insides!! It sounds kind of weird, but when else can you have a surgeon get a first hand look at your lower abdominal organs??

The recovery was surprisingly easy! I was in major pain for 1 day, until the gas subsided. Two days after surgery, I was only using advil for pain. 3 weeks after surgery I was walking 3 miles a day in 45 minutes. 6 weeks later, I had full clearance to resume ab, wt and full cardio work. I did do a lot of ab work and exercising before I had the surgery which I think helped with the recovery. I also drove within a week of surgery, but I put a small squishy pillow over my incision area to protect it from the pressure of the seatbelt.

I have no pooch from the surgery, and my scar is completely faded. I have not gone into early menopause. I don't even have any perimenopausal symptoms. There is skin numbness around the incision, but it's never bothered me. I had an awesome book that really covered everything in depth. I can look it up if you want the title.

I've talked to many women who wish they had just sucked it up and had a hysterectomy. They tried other measures like repeated D&Cs, arterial embolization, uterine cauterization etc. In every case, their fibroids grew back within months.

Hysterectomies have gotten a bad rap IMO and frankly I'm sick of it! I swear to god if men had to put up with the symptoms of fibroids for one frickin' month they'd stop all their ranting articles/commentaries about how women are being bamboozled by their doctors into having unnecessary hysterectomies when there are all these supposedly great alternatives. Yeah, we women are just so stupid about medical practice...Okay, rant over.

My hysterectomy changed my life! I get back 12 weeks of the year that I'd previously lost to my period. That's 3 whole months of doing whatever activity I want without having to think about my reproductive organs and whether they were going to leak through my clothing and onto the car seat, furniture or bed before I could change protection. Get it done ASAP and don't look back is my advice

HTH and good luck!
 
Hi again--I agree with Jonahnah about how hysterectomies get such a bad rap. I resisted mine and had a D&C, which did me little or no good, and finally did the hysterectomy at Bay State in Springfield MA with a surgeon who had done a lot of laparoscopy hysterectomies. I kept my cervix as well. My regular Ob-Gyn couldn't perform this kind of surgery but she was the one who recommended my surgeon, given my real fears about a long recovery.

Best,

Garance
 
I think hysterectomies get a bad rap because there many women who have them needlessly. I went to a surgeon for pelvic pain and he told me my uterus was prolapsed and needed to removed. He made it seem as though the process was a walk in the park. I was over 40, I had no need for my uterus. That is old school thinking. The uterus does more than house babies.

I went to a pelvic floor specialist and he told me that it was not prolapsed. My pelvic pain was from a lower back problem. The second doctor prescribed physical therapy and my problem was resolved.
Had I listened to the first doctor, I would have a hysterectomy and still had the problem.
I think the key it to know your own body, research, and ask a lot of questions. You have to be in charge of your own health.
In my SIL case, there is no doubt the hysterectomy saved her life.
 
WOW. Thanks for everyone's reply. I must admit after reading about the bladder sling, I think I might have to live with these stupid things. I DO have to plan my life around my period, I cannot leave the house or anything, I go through 40plus tampons the first day...plus pads..TMI? Sorry. Reading about that sling thing though and removing the cervix and all of that, I had no idea...really, this sucks.:(
 
I think hysterectomies get a bad rap because there many women who have them needlessly. I went to a surgeon for pelvic pain and he told me my uterus was prolapsed and needed to removed. He made it seem as though the process was a walk in the park. I was over 40, I had no need for my uterus. That is old school thinking. The uterus does more than house babies.

I went to a pelvic floor specialist and he told me that it was not prolapsed. My pelvic pain was from a lower back problem. The second doctor prescribed physical therapy and my problem was resolved.
Had I listened to the first doctor, I would have a hysterectomy and still had the problem.
I think the key it to know your own body, research, and ask a lot of questions. You have to be in charge of your own health.
In my SIL case, there is no doubt the hysterectomy saved her life.


Of course, I can see that in your case, your first doctor was talking out his BUTT!! However, in every single article I ever read crying out about "needless" hysterectomies, the supposed experts claim that uterine fibroids are a BS reason for a hysterectomy! They point to all the alternatives I mentioned earlier and essentially say "These treatments work just as well but women are too lazy/stupid to do the research on their own. They just LOVE having their doctor tell them what to do and LOVE having their bodies cut open and parts taken out." If the alternatives worked as well for as long, any sane woman would choose them!

Tneah, please do more research and talk to your doctor before you make any decisions yay or nay. Most women who have a hysterectomy do not subsequently develop bladder control problems. It's a POTENTIAL side effect that you should be aware of. Frankly, childbirth is a BIG cause of urinary incontinence, but women still birth by the millions and we're not all wearing Depends!

Also, like all forums, you'll find Hyster Sisters has its share of whiners who swear the reason they gained 40 lbs in their 50s was they had a hysterectomy. :p Not everything that gets posted there is gospel...
 
Johanna,

Thanks chica, I WILL do my research, I have a doctor who is the best in town and is very conservative when it comes to cutting gals open and removing parts. So that is good right? My concern is if they get big enough to cause problems inside my body, pushing against other organs and things like that. But I will wait and see, am having bloodwork done (of course) and then go back and see the doctor the middle of December, where I will talk to him about all my options.
We have a premed friend that said they never remove the cervix unless cancer is involved, its very unusual to do so , and that going through the belly is the better option. So, I have alot to mull over and will try not to get hysterical about it. Like I said, gosh, look what Carola is going through, my little problem is nothing compared to her and her incredible story.
Thanks for your replies everyone, I really appreciate it.
 
Hi again tneah,

Here's a link to the book that I personally found indispensible for my research. The author is an ob-gyn and she covered so much stuff that I had questions about that I couldn't find reliable answers to anywhere else.

http://www.amazon.com/Essential-Gui...=sr_1_1?ie=UTF8&s=books&qid=1227752168&sr=1-1

Don't worry about TMI with your posts. (The boys know to stay away from these threads!! :eek:) You cannot believe the confessions I heard after I had my hysterectomy. For example, my neighbor told me she wears Depends to bed when she has her period, along with 2 pads and a super jumbo tampon. She got tired of bleeding through onto the sheets. She can't WAIT for menopause! I'm sending ((((((hugs)))))) for what you are going through. Feel free to PM anytime with any personal questions about this--really! Take care sweetie!
 
I agree with you Johahnah. You will find the whiners on hyster sister but there is a lot of good information. I wouldn't rule out the power of the information on that site. It's not a bad source of information.

In regards to bladder sling.
When the surgeon removes the uterus it creates a small cavity leaving room for the bladder to drop.
And you are right, childbirth can cause the exact same problem. All our organs are supported with ligaments that can stretch from the pressure of childbirth and gravity. Running can stretch those ligaments. That is why kegels are so important- keeping our pelvic floor strong. We should teach young girls this very early on.
My bladder rolls forward and that's with my uterus in place.

I was irritated with the first doctor because he did not explain anything in detail. He made it seem as though it was a simple procedure. I knew better. No surgery is without risk. We should be given the information so we can weigh risk vs reward. In my case, there was all the risk with no reward. I'm so glad I spent the time to research, and get a second opinion.

I talk with my SIL and her only regret she had is that her surgeon did not perform thr procedure with her hysterectomy. She has 2 friends who both received slings.

I mentioned the sling to Tneah because I think it's important to research and understand what materials are commonly used, and wha the potential problems with that. Synthetic slings can, and do erode over time. The surgery to correct is extremely complicated and can damage the bladder. If not corrected, create sexual dysfunction.
Bovine is a natural material that your body will accept as it's own. Your tissuse will grow with it. I wouldn't allow my surgeon to use anything else.


Tneah, if you are suffering you should consider all your options. Anemia can cause a lot of health problems.

Good luck!

I forgot to mention. Talk about a small world. I met a woman on the hyster forum from my home town. She had surgery with the first surgeon I consulted with. He used a synthetic sling on her and it caused so much pain for her. The sling is too tight. She has been to many specialist trying to resolve the problem. Anyway, I felt really sad for her, but she is the reason I sought out a second opinion. She also provided me with the name of the pelvic floor specialist(my second opinion).
 
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I can tell you that the media has done women a great disservice...too many were performed before the women's movement (listening to the mom's of the 50's and60's, lots to do with begging for help to stop pregnancy before birth control was accepted)..........but I digress.........having seen SO MANY women who have had them, I've yet to meet one who hasn't felt like a million bucks after it...especially with today's which leave the ovaries and cervix...some don't even do hormone replacement and are happier...Fibroids are not only painful, but dangerous...

Look up your info and go to the doc with your questions...Let us know what happens!
 
I had a MEA done for heavy periods, etc but pre-op revealed that I had a cyst and fibroids, thus a need for a lap hystero. If I need a lap hystero and to remove my ovary, will I also need a bladder sling? I am still debating this surgery. I still have painful cramps but no bleeding due to MEA.
 
I had a MEA done for heavy periods, etc but pre-op revealed that I had a cyst and fibroids, thus a need for a lap hystero. If I need a lap hystero and to remove my ovary, will I also need a bladder sling? I am still debating this surgery. I still have painful cramps but no bleeding due to MEA.

Only your doctor can answer this question. Not all women need one. Write all your questions down and talk with your doctor.
 
my mother in law, in her late 40s, just went through a c-section style surgery to remove it all even ovaries. she had several fibroids that not only caused intense bleeding but there was one that was actually hitting her organs causing intense pain. she said it was worth it b/c she had been going through other alternatives(hormone/birth control pills,just having the fibriods and cysts removed) but they just kept coming back with a vengence. i would think very hard before going through something pretty big but the doctors told her it was the only way to be sure they do not come back. she had been getting them since she was 17 and she just did the basic treatments but it didn't help.

talk with your doctor and family more.

wish you the best!

kassia
 

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