OK, here's what happened on Halloween (long)

buffettgirl

Cathlete
Hi all. First of all, thanks to all of you for emails, PMs and prayers. We have been, and still are on an emotional rollercoaster and prayer is one thing that has helped keep us sane.

On Halloween my 19 year old DD, Emily, gave birth to a 5 lb 15 oz, 20 inch long baby boy. She had told no one and had no prenatal care. She was in big time denial, and hoping that her boyfriend, who has been away at basic training for the Army Reserve since July, would be home before she delivered. I had asked her quite a few times if she was pregant, because she had a belly, but she always denied it and said she was just getting fat. She never did get very big, and everyone who knows her was a shocked as we.

Unfortunately, the baby, Greyor Michaeal, has been found to have congenital cytomegalovirus. The infection is not due to her lack of prenatal care, thank the Lord. However, it is very serious and can cause a whole range of problems. Greyor's eyes have been checked and they are alright. His right ear passed the hearing test, but he wouldn't cooperate for the left, so we will have that tested in about 6 months. His brain ultrasound shows an enlarged left ventricle, but there is no way to predict what any lasting effects, if any, there will be. He could have developmental delays, learning disorders, retardation, or no problems at all. It is all a matter of waiting. He has stared antiviral chemotherapy which will be given by home health through a PICC line for 6 weeks, followed by oral therapy for another 6 months. This is experimental in infants, but we hope it will prevent any hearing loss. It may cause a decreased white blood count, so we will have to careful of infections.

The baby had been transfered to and still is in a neonatal ICU about 30 min away from our home. Emily and I have been staying at the Ronald McDonald House. I will NEVER pass a McDonald's without thanksgiving again. We hope Greyor will be discharged by Sat. I have a niece who is between jobs who will stay with Emily and Greyor for the first week. We are hoping Emily can get back to college (she lives at home and commutes) and finish up the last few weeks of this semester. How we will work that hasn't been determined yet.

The father is due home is a few more days. He was on a week long manuever and couldn't be reached, which is why I felt I couldn't post the information here. There are so many questions to be answered and plans to be made, that my head has been spinning. It's also been hard for my DH and I, besides the shock of your baby having a baby, because it's like living the birth of our own disabled son all over again.

I'm home for a short while this afternoon, doing laundry and trying to get some things arranged for Greyor's homecoming. Thanks again for all your thoughts and prayers. And I'll tell you what. This has been one very affective way to lose weight!

Please continue to pray for Greyor's health and for the decisions that Emily and her boyfreind will have to make. I miss you all and hope to be back around here again soon.
 
Ohhh Robin, big huge (((HUGS)))) to you & your family. I can't even imagine the emotional and physical stress you have been under. I have been thinking about you constantly. Little Greyor will be in my thoughts for sure. I am so glad to "see" you - this place isn't the same without you dahhhling. Take good care of yourself & holler if you anything.


Debbie


My grandmother started walking five miles a day when she was sixty. She's ninety-seven now, and we don't know where the hell she is.
--Ellen Degeneres
 
Robin: you, your DD and Greyor are at the top of my prayer list.
((((((((((((((((((((((((BIGHUGS!)))))))))))))))))))))))))

Missy
 
Robin - you know that you are in our thoughts and prayers (for those who do) on a constant basis. I am channeling every bit of positive energy I have into Greyor and his complete recovery, and to you and your whole family. I can't imagine how draining and trying this whole ordeal has been. Greyor is truly lucky to have been born into such a wonderful, caring, loving family.

Sending lots of love and hugs and whatever else you need. You have my number, so call me even if you just need to vent:)
 
{{{{{ROBIN}}}}} You have been much on my mind and in my heart and prayers, right where you will stay. I'll continue to pray for Greyor's good health and development. Like Debbie said, whatever you need--I'm here for you.:* :*
 
Oh Robin - my heart goes out to you, your daughter and especially Greyor. You are in my thoughts and prayers. {{{{HUGS}}}}
 
Robin - my thoughts are with you and your family, and I admire your strength through all of this. Your daughter probably has no idea who I am, but please somehow convey to her that she, her husband and Greyor have my utmost support.

Thank you so much for sharing this with us. And don't forget to take care of yourself through all of this.
 
(((((((((ROBIN)))))))))

I had no idea! I'm so sorry for all of your shock and pain. I will keep you all in my prayers for a healthy recovery for Greyor (love that name). Please let me know if there's anything I can do to help, you know I'm not far away and I'd be happy to assist in any way. (Seriously, just PM me.) You have so much on your plate.

Take care,
Marie
 
Oh my gosh, Robin! (((((((((HUGS)))))))))

I can't even begin to imagine what this has been like for all of you! I hope that Greyor turns out to be as healthy as possible and I hope that Emily and her BF make good decisions both for themselves and thier son. I am sure that with you and DH there to help guide them that they will! You are an amazing woman Robin! I knew this already but the grace with which you seem to be handling this situation just proves it to me even more! God Bless you and your family. Take care and remember that we are here if and when you may need anything at all! :)
 
Oh Robin! That's a lot to deal with all at once! I'm keeping you, baby Greyor, and your whole family in my thoughts and prayers.
Brandi
 
Robin,

I'm so sorry you are going through all of this and you and your family and little Greyor will be in my prayers.

((HUGS))

Dani
 
Wow Robin, I'm speechless.

I'm keeping you and your family in my thoughts. I'm sending you lots of hugs, Robin.

Pinky
 
((((((Robin))))))) My best prayers and positive energy go out to you, your family and Greyor!! Several years my youngest sister had a very similar experience. She didn't admit to being pregnant until her 7th month, and then the baby was born with a problem that required a rare intensitnal surgery. During that time my mom's mother had a double bypass in Milwaukee. We live in Memphis. It was horribly exhausting and emotional time for my mom and sisters. Unfortunately, I was in Arizona and couldn't come home to show my support. The baby had the surgery and it all turned out fine. The baby was given up for adoption shortly afterwards, which was the right decision for my sister.

I just wanted you to know that you're not alone in this kind of situation, and that everything can work out just fine though it's can be a long and windy road. Hang in there, and take care of YOU!

Hugs,
Connie
 
Robin,

You and you family have been continually in my thoughts and prayers. I truly hope you take the time to take good care of yourself. Your family doesn't need you sick on top of everything. I will continue to keep you in my thoughts and prayers.
 
I'm so sorry to hear this Robin. You definatley have a place in heaven. I will be praying for Baby Greyor, your DD and her BF, and you and DH. Please be strong and have faith that you will all be ok. If God leads you to it He will lead you thru it. Why he is leading you to this again is beyond comprehension. But you are a strong woman and you WILL get thru this. We will be praying. If you need anything do not hesitate to call or email me. Anytime.((((HUGS))))

Kali

www.PictureTrail.com/kkali
 
Robin, many prayers and hugs for you and your family. I have been wondering why I had seen you on here in a while. Please take care of yourself.
Heather
 

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