Anyone take meds for low T3 levels?

tneah

Cathlete
Just wondering...I was put on thyroid medication for low T3 levels and wondered if anyone else is taking meds for this?
I found out my levels were low and have been taking tiny amounts that I am supposed to gradually increase until I reach normal levels, I get my blood tested frequently to check on this.
I have never had to take meds for anything before so it makes me a little nervous I guess.
 
I'm not sure if it is for T3 levels but my dh has been taking Synthroid for his thyroid for about 8 yrs now. He gets it checked every year or so to make sure the level is correct now, but I think he got tested every month at first. I know when he first got diagnosed, he lost 20 lbs in about 2 months and had a lot of energy again, he was very sluggish and gaining weight w/ no real reason why until the diagnosis. Hope it helps you!
 
I take Cytomel along with Synthroid daily.
Do you have any specific questions? I will try to answer them if I can.:)

Becky
 
Yes! Thanks for answering. How long does it take until you "feel" better? More energetic and stuff? A few weeks? I have been on the meds for 6 days now. Did you have any side effects that are worrisome? I haven't experienced any...yet.
How do you feel now? Did your doctor find your t3 levels were low? Mine said that most just test the overall thyroid levels not the specific ones and alot of women can be low without realizing it.
 
Tneah,

I had headaches at first when I started it, but they went away and I've never had another problem. Cytomel is very fast acting, so it didn't take a long time for me to notice a difference (days). Any day now for you if you aren't feeling better already I would guess.
I don't have a thyroid anymore. It was removed almost 11 years ago because of thyroid cancer. I take synthroid every day and cytomel twice a day. It helps me avoid an energy loss in mid afternoon. When I was only on Synthroid I would fall asleep every time I sat down in the afternoon. Riding in the car or anywhere! :eek: Not driving , thankfully!:p

Hopefully it will help you feel better like it has me. It's expensive and I tried to go off it (with my doctors assistance) a couple years ago and that did not work for me AT ALL! I am on it for life!! Cytomel is my friend!:7

Take care,
Becky
 
tneah, I take both Synthroid and Cytomel. Yes, most tests only look at the T4 (which you take the Synthroid for). The Cytomel is for the T3. I think (it's been a while) that first of all, they found out my T4 was off, so they then tested further for T3 as well as the TSH levels, which is another test for T4, if I remember correctly. It will take a few weeks to notice a change, but you also have to be on the correct levels for that change to really take effect. It took a while for mine to get right, and then boom, I felt great. Now I think they are off again - for some reason, my doctor lowered the T3 and that has made me sluggish, but I've increased the Synthroid so hoping that helps. As for side effects, do not expect any. I am a person who cannot even take the smallest infant dose of infant Benadryl, hallucinate on some cold medications, was one of 1200 people who had a brain side effect from Doxycycline (not serious, but scary), Singulair gives me freaky dreams, I had panic attacks and very high pulse rate on a birth control pill, decongestants put me in la la land, the list goes on. I basically take Advil and that's it, in addition to the thyroid meds. Since your body is supposed to be making this stuff anyway, it needs it. I have heard people either love or hate the Armour - it is a natural thyroid medication but it is made from pig something or another. I do fine on Synthroid and stick to that. Good luck getting it regulated - don't give up. It can take little while but little by little, you will be feeling better.
 
Wow, I am so glad you overcame the cancer Becky!

Meowracer, my doctor has me starting off with one pill for five days, then increasing to two pills for 5 days, you top off at 5 pills...hopefully I will not need 5 to feel better.
I was surprised to find out about this actually, and now wonder when my levels return to normal, if I need to stay on this medication forever? I suppose I need to ask my doctor about that, I forgot, I was so shocked to discover my levels were "off". I just thought being cold and tired all the time were the result of my workouts and stuff.
I am always hesitant to put stuff into my body, so thanks for sharing your experience with me!
 
Thanks Tneah.
I am doing very well but actually still deal with the cancer. I have a type that doesn't respond to the only treatment (radioactive iodine). I had it twice and it didn't do a thing. Now I am just watched and they surgically remove it when it pops up. They found more last year and am doing the wait and watch right now... when it grows any more I will have it removed. Thankfully, it's a very slow growning cancer and I have a very aggressive doctor.

I hope you are feeling better and have more energy soon! That's not a good feeling to be dragging around and freezing all the time. I really do understand.

Becky
 
I am the same way - practically refuse to take any medicine b/c I know I will have the side effects. Your doctor gave you an interesting way to take the pills. The most I took was 2 in the AM, 2 in the PM; now it is 1 and 1, plus the Synthroid. I do think you will probably stay on it for life. You'll probably also notice that you will lose some weight. If you start to notice an increased heart rate and too much weight loss, see your doctor before your next schedule visit for bloodwork. Are you on Synthroid too? I found that my TSH levels have to be quite low for me to feel fine - the normal middle range is no good for me.

And yes, Becky - glad you overcame the cancer and are doing so well!
 
Yes, I take Levothyroxine and Cytomel. It is my understanding that it takes several weeks to see the full effects of these drugs, but you will probably be able to tell the difference with the Cytomel within a week.

I have to be careful not to get too much Cytomel because I get migraines and become very shaky and nervous, but also because my crazy body thinks it's starving to death and hangs on to everything I eat. Even though I become hyperthyroid when my dosage is too high, I end up gaining weight.

I don't know about you, but I can usually tell by the way I feel whether or not I'm at the right dose. When it's wrong, I'm either too tired to move or unable to relax, and my hair falls out in clumps. And of course there's the weight thing. I've gained weight on 1100 calories a day with heavy exercise. That's a sure sign something's wrong, one way or the other.

Shari
 
Hi Becky,

I also have had Thyroid Cancer. It will be 8 years this September. I had Papillary Thyroid Cancer and thankfully it was successfully treated with surgery and I-131 treatment. I still have some thyrogobulin antibodies that my doc is watching and until those all disappear, which I'm surprised I still have any after this long, I can only take Syntroid and my TSH levels have to be totally supressed so nothing grows. I was on Cytomel in the beginning under a different doctors care and even though it made me feel better, my levels shot up and had to go off of it. I also tried Armour thyroid but the doses were not consistent.

Looking forward to another body scan and ultrasound this summer. What type of thyroid cancer did you have? When I was in the hospital getting my radiation treatment, there was a man in the room across the hall who was there for his 4th radiation treatment!
I can't imagine having to do that more than once. It felt like I swallowed battery acid.

Take Care,
Carolyn
 
What??? Shari, are you serious? Now I am getting scared. I am taking the first one you mentioned, the levothyroxine, 2 capsules in the AM. I am starting to feel more energetic throughout my day, is this the one that makes you gain weight or makes your hair fall out? I am not taking the cytomel.
 
Hi Carolyn!

I also have papillary, only I don't uptake iodine, so the radioactive iodine doesn't work for me. Both times they did try , I had large doses. The first time I had to stay several days in isolation in the hospital, everything in the room covered in plastic , my food tray brought inside the door that I had to go pick up, so no one had to come near me ! Before I was allowed to be discharged a scientist came in and went over me with a gieger-counter !!! Freaky experience to say the least!:eek:
Since I don't uptake iodine, I don't have to go through the scans anymore, I have ultrasounds, blood work and occasionally Thyrogen. That Thyrogen is a God send. Have you done that before?
With it,you don't have to go off your medication and become so horribly hypo!!

Well, it's a pleasure to *meet* you. Thanks for your post!!
I'm glad you are doing well and please, if you don't mind, let me know how your scan/ultrasound go this summer.

Take care,
Becky
 
Tneah,

I don't mean to butt in, but I think what Shari was saying is that getting the correct dose is the trick! It's a very touchy thing, extremely easy to get too much or not enough.
With too much, most people get the symptoms of being hyperthyroid, which is shaky , heart palpitations, weight loss, insomnia, etc..
With not enough, they tend to be tired,gain weight, lose hair , be depressed etc..
That can be with too much or too little of either synthroid (levothyroxine) or Cytomel .
After being on it a while, you come to know if the dose is right by the way you feel.
If you experience any of those side effects , you need to see your doctor who will do a blood test to see what your levels are.
My dr. knows that I know my body and how it feels on the medications and sometimes even if the blood work doesn't indicate a big change, he will adjust the meds for me until I feel *right * again.

HTH's,
Becky
 
tneah - don't be scared at all. The medicine you are taking actually stops your hair from falling out and you from gaining weight! You may actually lose weight as your levels get closer to normal. I knew my level were getting more hypo b/c my hair started falling out, and I was gaining weight, so I went to the doctor and they upped my Synthroid (the levothyroxine). BTW, my doc will only prescribe name brand for that one, so you may want to look into that if you are on the generic. What is your dosage of that, and Cytomel, and what were your thyroid levels when you were tested?
 
I am taking the liothyronine. Each capsule is 20mcg. I started taking one per day for 5 days-felt no difference at all at that level. Now at 2 capsules perday-in the am right when I get up before food, I think I might be starting to feel more energetic. My doctor says every 5 days to increase the dose by 1 and stop when I feel "good", watch for things like heart palps and nervousness, if I experience those types of symptoms, then go back to the lower dose. I think the 2 might be doing the trick.

I also take progesterone during days 12-24 of my cycle to help with the occasional night sweats and PMS related symptoms that as I get older, are so bad! I am 41 by the way.

I am not sure what my levels were, I have the paper work at his office, like a dork, I didn't ask for a copy. I get too nervous at the doctors to remember to ask for stuff like that. I need to call and go pick up the blood test results. I know they were low enough to cause a concern, well obviously right?:) Thanks for addressing my concerns, this is a whole new thing for me, I have never been on any sort of medication before.
 

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