Update on my ADHD research

pjlippert

Cathlete
Hi all,

First let me say thank you again for all of your insights and personal experiences that you so graciously shared with me previously.

After many more hours of talks with our doctor, the teachers, counselor, the school principal, a few other other school administrators, here is what I've come up with so far.

My son, Randy is still having a lot of a trouble at school and will be placed on an ILP (Individual Learning Plan) for next year because of the fact that he has fallen so far behind in reading and writing. He excells at math. Today I spent two hours with Randy's current teacher and the school phychologist (who is streched thin throughout the district). She made herself available to observe Randy and to meet with me after my talk with the school Principal.

The Psychologist is AMAZING!! (her name is Michelle). She has evaluated over a thousand children for learning disabilities and behavior problems, etc. and has specialized in Autism, ADD, ADHD in both children and adults. She has written many books on the issues and has given talks all around the world. (Too bad she is moving to Wisconsin the next school year).

She also has direct experience in dealing with the disorders as she puts it, "My entire family is a case study- including myself!!". She went thoroughly through the causes of particular disabilities and explained the relation to the brain and behavior and even possibly Randy's skin issues. I won't go into detail in this thread right now.

Her evaluation is definitely ADHD and she has suggested that I research the Methalphenadate line of medications based on Randy's symptoms and his bad reactions to Vyvance and Adderoll. She said to research at patch called Daytranna (if anyone has experience with this med, I'd like to hear your experience).

Probably the best news is that the school can do the entire battery of tests to dig down to the specific issues.... ALL FOR FREE!! Also, because he will most likely test as ADHD I think that the school will be required to provide the additional assistance (someone mentioned the plan - 504?).

Michelle reiterated what nearly all of you kind people did regarding "with the right medication, it's like a light-switch being turned on" as well as, "If Randy had diabetes, wouldn't you want him to get the medical help he needs?".

She also suggested that I go on the patches with Randy not only to experience what he will go through but also because I have ADHD as well (based on our two hour meeting).

She gave me a couple of web-sites to check out

CHADD
Wrongplanet.net (very funny web-site)

The other schools I've spoken to Montessori, a private Christian cottage school and a stricter charter school probably won't be the right fit. I am still going to observe the cottage school my girlfriend sends her kids to.

Phew!! That's where things are at right now. Sheeeze- I broke out in a sweat just writing this thread (just kidding!).

Thanks again!
Pam
 
What a great update, Pam! I mentioned the 504 plan. :) Once you get the diagnosis, I also found a lot of things fell into place at school and they were very willing (and required by law) to do what needed to be done for my son.

By the way - my son was also delayed in reading and writing but excelled in math. That's been a huge asset for us because struggling in school can really wear on your confidence and having something we could point to showing what he is good at helped him not feel defeated. We also look for things outside of school that he can excel at to bolster his self-esteem. (Ping Pong is a great sport for him!)
 
Hi Cindi!Thank you sooo much!! How interesting that your son excelled and struggled with the same things. They way Michelle explained it to me about the writing in particular was the travel from the brain to the hand gets interrupted. I can't recall if I mentioned it or not, but my son seems addicted to his Gameboy, Wii and computer games (I limit how much he plays). But she said for most kids with ADHD (especially boys) playing these games stimulates the area of the brain that is malfunctioning and it's like Crack to them because it stimulates the pleasure sensors.

The more I learn, the more I want to learn!:D

Hugs,
Pam
 
wow - interesting, my son is also crazy about the Gameboy and Wii - we also limit the time he plays. I'm always amazed at how much he can tell me about a Wii game he played - in excruciating detail! Yet - he forgets to brush his teeth not one minute after I asked him too.
 
Once you get the diagnosis, I also found a lot of things fell into place at school and they were very willing (and required by law) to do what needed to be done for my son.

This is sooo true. Not all special education children are the same. They all need their own IEP (individual education plan) I actually had to go into legal mediation against the school district. Had to hire a lawyer and everything. Cost me a ton of money that I continue to pay for till this day. :( School districts are NOT required by law to give you the "best" therapy available. They only have to provide the LRE (least restrictive environment). In other words, . . .we as parents want the Mercedes Benz treatment for our kids, . . the school district is only responsible to provide the Hyundai or Saturn version. I attended this conference in california
http://wrightslaw.com/info/lre.index.htm
I reccomend it to EVERYONE with a child with special need because you are now your childs biggest advocate. I'm not saying start a fight with your school district but be informed of what options you have and only through trial will you know if something will work for you. Even things I didn't think would work have worked for my son.
Good luck!
Oh and be patient. It takes a while before you can truly find the right kind and dosage of medication.
 
Hi Janie1234,

Thank you so much for your insights! I'm very sorry you had such a difficult time with your school. So far, our school system seem willing to work with us. They know very well that I won't back down. The Superintendent lives around the corner from us and I swear, I was ready to take it to his level if they didn't cooperate!

There is still a mix of opinions on to medicate or not to medicate. Ugh!! :eek:

Pam
 
I went back and forth with medications. Finally it dawned on me that there really wasn't much to lose in just trying the meds for a week - we could stop if it didn't work or we didn't like the effects. We noticed an improvement that first week.

I'm not familiar with the patch, but my son takes Concerta which is time released over 12 hours and then is out of his system. Adderall (I think) takes a month to build up to be effective and you have to take it everyday. The concerta he doesn't take on weekends, summer, holidays, etc. and it doesn't stay in his system.
 

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