Oh Sheila, I am so sorry you lost your mom, especially when you were so young.
Maggie, I am so blessed with friends and my cousins. I have no siblings, well half-brothers from my dad’s first marriage but no relationship with them. My cousins just left yesterday. We spent so much time reminiscing and laughing. Their mother was my mother’s only sibling. We spent a great deal of time together. My friends… well friends are family you choose and they are awesome. But, it is cathartic to talk about this with people who are not grieving too. Does that make sense?
Sandra, Wendy, and Julie thank you so much!
My mother had scleroderma (
http://www.synnovation.com/sclerodermafaq.html.). We knew she had raynaud’s, skin changes (hyperpigmentation, spider veins on her face and neck, recently calcium deposits), Sjögren’s syndrome, hyptothyroidism, difficulty swallowing, the list goes on. Mom had several isolated episodes of "stomach" pain, nausea, and diarrhea/constipation over the last 2 or 3 months. She
attributed it to her IBS. She has been fine other than those episodes
which lasted usually one day. The Saturday before she passed away we went to Mass together, she came over afterwards and watched TV with Sydney, and she ate dinner with us.
Sunday she began complaining of her stomach but thought it was just IBS again. Monday she still was complaining, but she didn't feel it warranted a visit to the doc, especially since she had an appt. Tuesday the 26th. Tuesday AM she called and had decided she needed to go to the ER.
When I arrived they said she was in septic shock. She was alert, awake, and oriented... talking to us. She said her entire tummy AND back hurt. She looked terrible. I KNEW she was very, very sick. I called my DH in Chicago and asked him to come home ASAP because I didn’t think she would live. He had driven there luckily. She was in the process of being transferred to Barnes-Jewish in St. Louis. I stayed with her until the ambulance picked her up.... told her I loved her... Sydney told her she loved her... mom said she loved us... and that was the last time we spoke. We talked with BJC and she was on her way to the OR within 10 minutes, I was still
here trying to get ready (difficult with Matthew in Chicago, the kids,
etc.). The doctors weren't sure if it was the scleroderma, which would mean there was nothing they could do, or something that could be
surgically corrected.
On the way to St. Louis, I received the call that her bowel was basically dead except for a few inches. The options were to let them remove the bowel, which would not have left enough bowel and you can't live without bowel, or let them close her up and keep her comfortable. If they would have done the surgery there was less than a 10% chance she would survive the surgery. She would have been on dialysis because there was not enough bowel left. We chose to keep her comfortable. I spent 4 hours with her on the vent... she never regained consciousness. Matthew was there, but he had Jordan so we took turns sitting with her. Finally, Matthew and I discussed how upset she would be for being on that vent. So, they discontinued it and she was gone within 10 minutes. She was in the hospital just less than 12 hours. We made the right decision, she would never have made it through the surgery.
I just can't get my mind around everything that happened. I wish I would have arrived at the hospital with her, so I could have had one more moment. But, when you love someone there are just never enough moments. I know I said this already, but motherhood is such a special gift. Moms are the only ones with us from the very, very beginning. I am very thankful I was there at the end because not everyone has that opportunity. Sorry to ramble! Again, thank you for letting me talk this out!