Rumination syndrome: sorry if this is too graphic

[Zozo]

Hello, has anyone heard of this? It matches my symptoms exactly. After practically every meal (except certain foods, mostly vegetables, lean protein and nuts and oats) I 'regurgitate' my food... I thought it was almost chronic vomiting, and the doctors seem VERY reluctant to help me at all. I can control it if I limit my diet, but it is very socially awkward. The problem is that nobody seems to have heard of it. I have been suffering from it for about 3 years. As soon as the doctors realise it's not bullemia, they lose interest (the irony is that I would give ANYTHING to be able NOT to be sick after eating ). I've had so many tests they know it's nothing more serious. They have just said it's IBS, and then left it. Yet I came accross this the other day, and cried I was so happy. It exactly described every single one of my symptoms. However, nobody's heard of it, and I don't know anyone who has experienced it.

xxx

 

[silbow]

your question

I have never heard of your disease but you should find out what type of doctor would treat this. When you know what type of doctor contact the best hospital in your area & ask for some specialists. Interview the doctor & go from there. Good luck, do not let any doctor intimidate you.

Karen

 

[Zozo]

Thank you Karen for your lovely response. I have spent too long having doctors not believe me...I will not let them intimidate me anymore! thanks so much for your encouragement.
Zoe
xxx

 

[DixieGirl]

I'm so sorry you are going through this and the Dr.'s you've seen have been reluctant to help I know you must be so relieved to being a step closer to figuring this out. I would do exactly what Karen said and work on finding a Dr. who treats this and always remember...you know your body better than any doctor and you are hiring them to work for you, so you deserve for them to listen and try to help. If they can't help, they should at least attempt to refer you to someone who they think can. Best of luck...keep us posted! (((Hugs)))