OT: kids and ADHD meds

My daughter did have 6 hours of testing done by a psychologist and that included questions sent for parents and teachers. One of the things I'm wondering - and maybe somebody can clarify - is if her ADHD is what is causing some of the developmental delays?? So if we get the ADHD handled will she be able to catch up in the other areas? My biggest concern is getting her so she can handle the academic things so she can have confidence, self esteem blah blah blah. Academics is where this stuff is causing a problem. We haven't had any problem behavior or real concerns other than that. When we decided to test her it was on the advice of my pediatrician. We had decided to hold her back to repeat kindergarten and they just advised us to not hold her back just for the sake of holding her back. They thought it best to find out WHY it was best for her to be held back. So here we are.
 
I am a teacher with an ADHD son. This... what do I call it? I don't see it as a disease or a disorder. It is a uniqueness that complicates life for people. No two kids present the same. There are generalities in some of their struggles and symptoms, but the reality is, they struggle in different ways. I just want to share one pitfall I have fallen into, and seen many of my parents do as well. We want to "fix" these children, and we grab at this straw and that one trying to find something that works. Whatever you do to help your child, give it time! Don't jump from one potential help to another without giving your plan of action a good amount of time to be successful, and don't try too many things at once. Get a good doctor, keep a diary, and thank God for small improvements. They add up over time. Don't rule out drugs, but don't rely on them to "cure" your child. Your child doesn't need a cure. There are many wonderful characteristics that come hand in hand with ADHD. Many brilliant successful people are ADHD. You child just needs to learn to adapt. He or she needs to learn strategies for dealing with his attention problems. One other thing. I really don't think it is appropriate for a teacher to tell someone that their child needs medication. A teacher should inform parents of the stuggles their child is having, but it is not her place to recommend medication. As you've seen from this thread there can be a number of things going on with kids who are assumed to have ADHD.It is not a simple diagnosis, and there isn't a simple fix.

Hopefull
 
THANK YOU! I don't feel like my child needs to be cured. This whole struggle has been because she seems so perfecty normal and perfect and yet I sat through two hours of hearing how "disabled" she is. And now she needs to be "doped up" to succeed. I just feel like she's wired differently and needs to get information in a unique way and she'll be fine. But on the other hand the world is what it is...

Jen
 
Jen,

Hopefull is so right. Don't ever think you need to "cure" your child. My children are who they are and I cherish every kiss, hug, acccomplishment and challenge. My boys are extremely intelligent, intuitive, creative, full of life, giving, loving, and I love seeing the world through their creative, untainted eyes. ADHD or any other behavioral/learning disorder/mental dx is not a disease - it simply means they are wired differently and have much to give if we are only open to receiving. The world simply isn't "wired" to embrace their special gifts.

If you researched the list of famous inventors, writers, scientists, artists, etc. you'd find a great number of them were ADHD, bipolar, etc. And where would we be without them. Leonardo DaVinci was really weird by all accounts...he wrote backwards for crying out loud; he invented many mechanical devices on paper hundreds of years before anyone was able to comprehend them...and his art, well...

{{{{{{{{HUGS}}}}}}}} to you and your daughter. You are a mother who will "embrace" your child's gifts.:)
 
I have a 9 year old niece who was diagnosed as ADHD when she was around 6 or 7. My sister was very, very reluctant to use medication as well. She consulted with my niece's doctor and a psychlogist, and I believe was referred to a doctor who specialized in working with kids with ADHD.

My niece is currently on Strattera, and it has helped. However, as someone else mentioned, it was just one peice of the solution. My niece also sees a school psychologist regularly (I think my sister and her husband also attend some of those sessions with her), and my sister also works very closely with my niece's teachers as well. All these things together have helped her a lot in school.

My best to you, I hope this helps.
 
Very interesting thread with lots of information, lots of passion.

I have two stories to tell, and both these kids are teens.

First my nephew. At 14 he was struggling in the gifted HS he was at. This is an extremely bright kid, but he started getting darker and moodier, and violent, and ended trying to kill himself several times. So my sis searched for ways to help him and he was diagnosed with ADHD-inattentive. They tried one type of ADHD med and immediately took him off as it made him MORE violent. They tried a second, and that worked for a year, and then he begged for a higher dose because he could feel it was not working. The medical people they were working with said no, he was at the highest he should be at. They said they could switch him to Adderal, which is the same class of drug the first type he took was in. He was very afraid of that, but they explained that even though it was the same class, they had much better luck with Adderal. So he agreed to give it a trial. The first day, he immediately noticed a difference for the better. Within a month he was up to almost straight A's and even more importantly, by sis was no longer afraid that he would harm himself or them. He now is into bike racing, and while a bit moody(teenage moody) he is doing much better. So for those that say ADHD meds cause suicide, that is very blanket, the proper meds should help a kid.

The second child is my own, and BTW, ADHD is genetic. She is 13 and has struggled with school a long long time. The problem is, she is making passable grades, but it is a major battle to get them. Because she was a sweet child, a happy child, and getting D's and C's, and the occasional F, the school did not seem to want to help, they helped the kids who were way below the line(their funding is limited, I know they struggle). In our school system, 7th grade is very hard, and my daughter who before was treading water, started sinking badly, and with it went the sweet happy child, and as fall progressed, things went very far south. This is a difficult age anyway for a girl, without this. I had long suspected ADHD, but she is not in any way hyper, so thought it must not be. We finally took her to an outside source to have her tested for it. Well, she does have ADHD inattentive, but we also found out she had a learning disability. The two combined are what makes it so hard. She has a gifted IQ and that comes out in amazing art and creative writing, but Math and Science are very difficult.

We subsquently also had her checked over by her doctor as well, who did all the questionaires and agreed with the ADHD inattentive diagnosis. We went to the doctor in hopes the doctor could talk to my daughter about meds and educate her about them, because my daughter refuses to have any meds as well as refusing extra help from the school for her LD. And as the story about my nephew illustrates, the meds can react differently with different people, and without cooperation, we will not succeed in finding the right meds. But she will not cooperate, so we have worked hard with the teachers in making quiet changes, such as making sure she is close to the front, if she is by a particulary noisy distracting student she gets moved. In Math notes are taken for her, and I spend about 2-3 hours a night on Math and Science with her.

It is a rollercoaster living with this type of child. When she puts 150% into her work, she gets passable grades, mostly C's, a couple of B's, usually a couple of D's. Third quarter is usually her best, as it takes 2 quarters to get into the swing of things, and then the 4th quarter is a giant slide. I have already begun talking to her about her plans on making 8th grade more successful than 7th. The principal is hand picking her teachers to make sure she gets teachers that will give her the most success(he has talked with last years teachers to get ideas).

The plus side, she is wildly creative and interesting, and I think one reason she rejects the thought of meds, is she is afraid she will lose this. The doctor has assured her she will not, that meds would just help her focus and tap that smart brain of hers. I did ask the doctor if this was forever, and her answer surprised me. She said 1/3 grow out of this, 1/3 the issues lesson, and 1/3 remain as is.
I think learning coping skills are a must, the physchologist who tested her stressed that to her. That grown-ups with this have secretaries, aides, spouses, friends who help this. And she has done this. Together we devised some daily rituals that help her with organization. She has enlisted the help of some of her best friends at school and that has helped. She does have a very difficult time of asking the teachers for help, preferring to blend into the woodwork when it comes to them. Also, exercise helps, she swims and in the summer plays softball.

A lot of people believe that ADHD is over diagnosed and I do think certain types are, people wanting their active children to just be quieter. My DS was always very active, and I had people tell me he needed Ritalin. He learned to channel his energy and is heading to college this year. What I did find in my research is that the ADHD-inattentive child is very much under-diagnosed, and this is usually girls. Because they don't cause any harm in the classroom, just appear to be dreamy, they get missed. And if they are highly intelligent, they can get passing grades, but you constantly get from the teachers, "she is just not working to her ability". Give me a dollar for everytime I heard that, I would be very rich!

ADHD is very tough to deal with. Lots of people turn their noses up and tell you this is not a "real" issue, just a reason to medicate a child into submission. They will site that in our younger times there was not ADHD like now....well there was...they were in the cloak room getting paddled, the odd child sitting in the corner by themselves failing. They were there, there was just not the knowledge to help them.
 
Jen,

What kind of developmental delays is your daughter experiencing?? This thread had me doing a lot of thinking last night and I referred back to my DSM (the manual used to diagnose such things) and from what I can tell, it stated that you could not diagnosis ADHD if there were signs of a Pervasive Developmental Disorder (ie autism, etc). I'm assuming many of the symptoms of PDD mimic those of ADHD, and can at times lead to a false diagnosis of ADHD. I'm really not trying to stir the pot just adding info that I've come across.

I also wanted to add that one of the best things you can do for a child who has ADHD is implement a token reward system with them that is focused on behavioral change. Get a big poster board and write on it all of the tasks, chores, daily activities that your child needs to accomplish during the day and each time she successfully completes something give her a token of some sort. After a period of time that you choose (end of day, every couple days, end of week) allow her to exchange those tokens in for some type of reward (trip to get ice cream, trip to a special place, special picnic, small treat, etc etc). The reward would be anything that you see your child would really strive hard to attain. Ideally, if she's not already, this is something that her teacher should also be willing to do for her.

Keep us posted on how things are going!!

Deni
 
Wow Dorothy...that was a very touching post. I admire everything you are doing for your daughter. And I thought your point on the underdiagnosis for girls has A LOT of truth in it. It sounds like your daughter has a lot of spunk and works exceptionally hard. I admire everything you are doing to help her with everything she is experiencing. It also sounds like she is in a wonderful school that is incredibly willing to do anything possible to encourage nothing but success from her...that has to be a huge weight lifted off of your shoulders. So many schools these days just write these kids off and don't invest anywhere near the amount of time and energy needed to meet them where THEY are...not where the school expects them to be. Good luck to you and your daughter!!

Deni
 
Thanks Deni. I am thankful I am in this school system, but it took pushing from my husband and I to get a response. Not because the school and teachers do not want to help, but because they are overwhelmed with special needs kids. The law that passed that requires special needs kids to be integrated into regular classrooms is not a bad law, but this has placed a tremendous burden on the schools and teachers. My daughter's 3rd grade classroom had 5 very mentally handicapped kids in it. They were each assigned an aide, but still there had to be so much effort in keeping the classroom under control, that a struggling child who is quiet gets real lost. Her 3rd grade teacher had started the process of getting her diagnosed and helped and then she had a grave illness that took her out of the classroom for a significant amount of time. So my daughters problems got swept under a rug for a time. In 4th grade her teacher again championed for her, and again she was placed in a classroom with a significant amount of kids, whom IMO needed extra help and were not getting it. It was a very disfuntional classroom. Her teacher pulled some strings and was able to get my daughter pulled out for extra help. This was also the year we found out she had eye issues as well(my research shows that quite often ADHD kids have tracking issues with their eyes, they don't know if ADHD is part of the cause, or the eye issue is helping create the aDHD). The school helped us find a specialist, to help get this problem fixed with therapy. Before therapy, she refused to read out loud, and absolutely hated reading. Now 3 years later she reads fine.

At this school I asked for a 5th grade classroom that had a very organized my way or the highway teacher and extra help on math and reading. They complied, in fact I had parents tell me I would hate her 5th grade teacher because she was so into the my way or the highway thing. Well, I did not have to like her or hate her, but my daughter LOVED her. She thrived in that structure, yes the teacher was very much, this is my way, but she was also a very animated interesting teacher. Her expectations were clear cut and the is what my daughter needed. My daughter was put in the very lowest reading class and the very lowest Math class. After two weeks she came to me in tears and said the reading class was too slow, she did not belong there. I asked if the math was the same and she said absolutely not, she needed to stay there. I notified the reading teacher and she agreed with my daughter and the school moved her into regular reading the next day. This taught my daughter that she CAN self advocate, something she still struggles with. The Math class and teacher were a God send. They clicked from the beginning, and she did quite well in math that year.

My daughter equates getting help from the Special education teachers as being one of the more severly handicapped kids and she rejects that. She has agreed that the quiet help the school can give her, better seating, earlier heads up on tests, help with notes, are good things.

Teachers these days have a lot to deal with. They have classroom sizes are 35-40 kids and from my daughter's description the kids are very rude to the teachers. She often tells me how dismayed she is at the treatment the teachers get, even the ones she does not like. I have been told by other parents that their kids say the same thing, there are a good portion of rude kids in the classrooms these days, and the disruptions are quite bad. So when a kid has focus issues anyway, this really makes it hard. And this is in a school system that has less discipline problems than others. I cannot imagine what the bigger schools in the nearby city would be like. They have cops assigned to patrol those schools.
 
You must be so very proud at your daughter's ability to tackle this head on...and to be so intuned with herself that she knows when and how to speak up for herself...that can be such a difficult feat with young girls these days regardless of any educational limitations. You are very right in that the school systems are stretched way too thin and often it is up to us, the parents, and even the children to really work diligently at getting things done. Keep up the good work and I wish nothing but the best for your daughter and everything she strives to achieve :D !!

Deni
 
It's been an active weekend, with my kids birthdays and so I've been away from the computer.

Am glad to hear that your children are doing okay, and are not part of a growing majority of children who are becoming addicted to these drugs, which addictions are similar in nature to cocaine.

One last thing before I leave this thread completely, In his 1932 novel, BRAVE NEW WORLD, Aldous Huxley depits a "utopian", but totalitarian society, one that is insane and bent on control. It is a controlled civilization, using, as Huxley stated, the "technique of suggestion -- through infant conditioning and, later, with the aid of drugs."

In 1967 a group of prominent psychiatrists and doctors met in Puerto Rico to discuss their objectives for psychotropic drug use on "normal humans" in the year 2000. In what could well be a sequel to Huxley's novel -- only it wasn't fiction -- their plan included manufactured "intoxicants" that would create the same appeal as alcohol, marijuana, opiates, and amphetamines, producing "disassociation and euphoria." Drugs to "enhance the learning capacity of the individual ... would likely alter the total educational process."

The resultant report also stated: "Those of us who work in this field see a developiong potential for nearly a total control of human emotional status, mental functioning and will to act. These human phenomena can be started, stopped or eliminated by the use of various types of chemical substances. What we can produce with our science now will affect the entire society."

If you want more info on this, I would suggest this link:
www.adhdfraud.com

Also more info at www.cchr.org
 
Hi Jen,

I have my own story to add. Like Dorothy's daughter, I was the quiet, gifted girl who caused no problems. But at every parent-teacher conference, my parents were told, "she's very smart, if we could just get her to focus!"

Fast forward 25 years. After my mother died, I confided to my doctor that I was completely overwhelmed. He prescribed Zoloft, even though I protested that I wasn't always grieving, but I had always been overwhelmed! I remained convinced that my problem was not depression, and that that we were missing it. I showed a teacher friend my grade school reports, and she said it appeared to be a classic case of ADHD - inattentive type. I told my therapist (who had been forced on me by the doctor who was convinced I was depressed), and she dismissed the idea, but I insisted on being tested. Low and behold, that had been the problem all along.

I now take Adderall and have improved greatly. If I could turn back the clock, I would have been taking it since I was five.

To Karen and anyone else who doesn't believe in medically treating ADHD, I assure you that such blanket statements don't hold true for everyone. No one should medicate without doing their homework. But some of us need them! Every person is different! I have cleaned up my diet and seen huge improvements in my health, body shape and fitness level, but my ADHD was not affected one iota.

This trait is genetic. I never knew my real father, but my godfather was in the marines with him. Each of my ADHD traits were observed in my father years ago. My daughter doesn't have it, but if she did, I would consider any and all types of treatment, including medication. (Notice I said consider; each case is different.)

BTW, I studied many types of medication after losing my mother to cancer. There are many, many drugs prescribed without good reason, but ADHD drugs can help people like me lead productive lives. Yes, they can be addictive, but those without ADHD shouldn't be taking them since they don't need them!

Jen, you are doing the right thing in exploring all forms of treatment. Whether or not to medicate is a decision you must make with a doctor, or two, or three, or however many it takes. (I do know that PDD, ADHD, and bipolar disorder can have similar symptoms, but they can also co-exist.) As for you, Karen, please e-mail me if you have a response. I don't want to start a war of words, but I felt that there is another side to your anti-medication posts.
 
Karen,

I sincerely hope you are still reading this thread, if not joining in.

I must say that your posts have struck a very tender nerve with me. I will try to relay my thoughts calmly and rationally, and will hopefully succeed.

Let me say first off that I was diagnosed with ADHD back in the early 70's when it was called "hyper-kenetic" and was NOT an over diagnosis for kids who were just being active children, it was truly a real syndrome. I was prescribed Ritalin and while I no longer take that medication, I do still need medication to function. I am in NO way addicted and was not "made" dependent on these drugs.

In short Laymans terms, it was explained by my doctors, both then and now, that true ADHD is a result from the brain either producing too much Serotonin or the mechanisms for re-absorbing the Serotonin not functionally properly. The drugs that are given regulate the serotonin, so that there isn't any excess chemical laying around in the brain.

That the drugs that you mention as being highly sought after Street drugs because of their affects is true--HOWEVER that is because in people without this chemical malfunction, the drug reacts extremely differently than in people who do truly suffer from ADHD. And I do mean suffer.

These drugs make it possible for those of us who have true ADHD to function in the world without experiencing extreme stress and depression or worse. Our brains are constantly "moving" and it's VERY hard to concentrate on...anything! These children can't just "pay better attention" or "settle down" because, as libra01971 said, of the chaos going on in our heads.

This chemical issue is not something we can control, it is the way our bodies ARE. To say that we are "creating a dependence on drugs" is, no offense, wrong. It is the same as saying a diabetic is creating a dependence on Insulin by taking it to control their Insulin levels. The fact is that their body needs it to function properly. With ADHD we are NOT addicted, our bodies need these drugs to function properly, the way yours and millions of other peoples bodies do. Always have and in some true cases of ADHD probably always will.

Therapy wasn't offered as an added help in the early 70's so I didn't benefit from any. I wish it was, because I could certainly use the coping mechanisms that I would have learned then in my life now.

I think learning BOTH sides of an issue is important before one starts giving alarmist information about the addiction factor and side effects of these drugs on ADHD people.

All that being said---I agree that, unfortunetly, ADHD is extremely over used as a diagonsis, to the severe detriment of true sufferers. I think, as a lot of smart people here have said, that major research should be done when a doctor says your child is ADHD. Get second and third oppinions and look into all treatment options available. I can honestly say that if your child truly has ADHD, it does way more harm to expect the child to cope with out help, be it medicine or therapy.

Nadine
 
I really appreciate the additional input from thjster and Nadine. I do agree that ADHD can be a very real thing. Living with my husband for the last 11 years has been a learning experience and it's taught me more patience!

Like every other parent I want to do the best thing for my daugher and if possible avoiding using medication. My biggest concern and I've said is keeping her self-esteem and confidence intact. With that I believe she can accomplish anything. But watching other kids progress and she lags behind and struggles could really affect that.

Everyone's personal experienes and stories are so appreciated. And even though so many feel so strongly in certain ways this thread had remained very kind. I'm thankful for that as well!

Jen
 
Nadine, well said. If someone has never truly dealt with this either in themselves or with someone they love it is hard to understand. There is such pain in trying your very hardest, and still not being able to scrape by. To not be able to focus to remember even things that are important to you. My daughter has the added problem of a slow processing speed, so when the information slows down getting to her very bright brain, a brain already going many miles this way and that, well nothing gets in. We are discovering coping measures, and have also discovered some really good books.

One book for girls I highly recommend is
The Girls' Guide To AD/HD: Don't Lose This Book! This book is told in the voices of teen girls, with lots of humor, but also lots of good information. In the treatment section, one of the characters of the book refuses to take meds, but talks about other coping stradegies.

Another book that I thought was well done, and was written for the college level student:
Learning Outside The Lines : Two Ivy League Students With Learning Disabilities And Adhd Give You The Tools

Another good book:
Driven To Distraction : Recognizing and Coping with Attention Deficit Disorder from Childhood Through Adulthood


There is also an ADHD newsletter and magazine. Search the net, get books from the library. Learn everything you can about ADHD, about the various treatments, meds included.

This is a very real thing. One nurse friend of mine told me, you would not refuse to wear glasses if you are nearsighted, why refuse ADHD meds if they are warrented.
 
This is long but you are going where I have been. My son now 21 yo was diagnosed with ADD in 6th grade. He was borderline hyperactive. In going through the evaluations I came to the conclusion, I have some qualities that fit the diagnosis as well. I also am a middle school teacher who works with many ADD/HD kids in my class. We have used therapy, coaches, and meds at times.

If I were you, before I do anything I would arm myself with information.

Someone else mentioned "Driven to Distraction", and "Answers to Distraction". I also liked "What do other people know that I don't".(This addresses social skills) I would recommend ADDitude magizine and they have a good website.

Our health plan also provided a counselor who functioned as my son's coach. She was invaluable to helping him to be accountable for himself and not because of us. Many ADD kids have a disconnect between actions and consequences. He has always been a huge risktaker so I can't tell you how he did with that.

I would also work hard to develop routines and habits in your house that are supportive of this type of personality. I work out everyday as did my son because of the strong connection between focus and regular exercise. We also were careful about meals and food choices. Diet in terms of regular protein and high fiber to keep blood sugar levels constant and healthy eating hellps attention/focus and mood swings.

Routines for sleep and waking are critical as well. ADD kids often have a hard time unwinding to sleep and a routine to promote losts of transition time to unwind for sleep helps so much. Well rested people just function better.

We also used "Flylady.net" to build and teach organizational skills which helped more than I can say. I only wish I had found her timer and do anything for 15 minutes when he was younger.

My son is married and a dad and in the military now and has been med free for many years. Before the military he had jobs that his uniqueness with the ADD were assets. Meds and coaching gave him the boost that was needed when he was having a very difficult times. The other supportive measures have carried him to where he supports himself both financially and in terms of life skills that make him who he is now.

I really want you to realize that ADD/HD is not a problem it is a skill set that is different and needs different molding and shaping from us as parents.

Take care,

Teachreef
 

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