ADHD in children

pjlippert

Cathlete
Hi again,

Just to add to the fun of life and something I didn't exactly mention in my 'he just doesn't get it' email is that I believe and it has been suggested by the school counselor and teachers that my son may have ADHD. I'm taking him to our D.O. today for the next level of evaluation. A while back a pediatrician had said he shows signs of it and suggested seeing a child psychiatrist, which seemed too weird for me and the reality of it broke my heart. So, I didn't do it. I think I may have no choice now. :(

So, let's say he is diagnosed, what next?? Who has had experience with this either directly or indirectly? Medicating my child is not a pretty option. Who can shed light on this?

Thanks again.
Pam
 
I've been there. It is heartbreaking, but once you get into managing it, it is not as bad as it seems. The first time I gave my son (then in 1st grade) his pill, I had to walk away so he wouldn't see my crying. It's really hard.

BUT - I will tell you that seeing a psychiatrist is a good next step. They can help you think through what is really going on with your son and what combination of interventions will help him.

I also recommend that you go to the school and observe your son in the classroom. Kids in the classroom are often very different from home or with friends. It will help you better understand what the teachers are challanged with and what your son is struggling with.

Also - Once you have the official diagnosis, your school is required to meet with you and work through an action plan for your son. It's a 504 plan (http://specialchildren.about.com/od/504s/f/504faq1.htm) - and can include things like seating, extra time for tests, OT, etc. The description makes it sound like it's just for children with physical disabilities, but my son has one and the process for creating and implementing it has made a huge improvement in his classroom experience - he's happy, teacher's happy, mom's happy. :)

Good luck!
 
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Thank you, Cindi. The words, 'he's happy, teacher is happy, mom is happy' brought tears to my eyes. I'll let you know what I find out.

Thank you!
Pam
 
Pam - my oldest son who is now 22 was diagnosed with ADHD at 7. It was brought to my attention by his 2nd grade teacher. She tried a lot of behavior modification/reward, etc., and she also consulted with the special ed teacher for more insight. The thought process being that if a child is just lazy or bored, offering them a reward will most likely get a young child to do the work.

However, for a child with ADHD, this is not the case. No matter the reward, they do not have the ability to stay on task. I was a hard sell though because his father had just left us earlier that year so I thought that my son was having difficulties in school because of the separation between his father and myself and the emotional distress that caused him.

But the issue of ADHD resurfaced several times in the next year with other educators that knew of the problems at home but still believed strongly there was a disability going on as well.

So I decided to look to medication as was suggested (he was already in therapy because of the divorce). Like you though, medicating my child was something I took very seriously and quite honestly I didn't want to do it at first. But I did relent and he was started on Ritalin for the first couple of years then was switched to Adderall which turned him into a monster sometimes so we switched again after a few months to Concerta. That seemed to be okay.

Unfortunately, when my son was about 15, he had so much emotional baggage from his dad and his dad's addiction that it became difficult to differentiate between behavior that was ADHD induced and what was emotionally induced and my son went off his meds - refusing to take them, anger, etc. and the last 8 years he has struggled enormously (long story).

So 15 years later after the original diagnosis, the advice I would give is to take what the doctors say very seriously but if there is something that just doesn't sit right with you, get a second, third, even fourth opinion if you can manage to. I was a single parent back then and at the time, did not have a computer at home so I read several books on ADHD. Be careful about getting bad information on the internet. Sometimes the stuff out there can scare the crap out of you. But there are some good sites as well.

Also - do not be afraid to reach out to others around you that have a son or daughter with ADHD that has been dealing with it for a while. You can get a lot of info from parents who have walked your path.

Goodness gracious, you have a lot on your plate. Stay strong and try and stay ahead of the game best you can. But remember that ADHD can be managed with a good team involving you and his dad, his pediatrician, his teachers and a very good psychiatrist who is willing to listen and work with you and what you are comfortable with. Also, at some point you may need to get a psychologist involved to help along the way.
 
This is a tough time for you, but it will get better. My husband has ADHD, and when we had our first son, it seemed prettty likely from the beginning that he had it too, but we didn't really concern ourselves with it much. When he was in first grade, the teacher pulled me aside and said if we could afford it, we ought to have him evaluated. He was sounding out words less well than a non-native English speaker. I could see that he physically could not focus on the letters on a page. So, we went through a very extensive evaluation, and yes, indeed, the child does have ADHD, as we suspected. We were very very hesitant to medicate. It took three different doctors telling us that the side effects of ADHD were worse than any medication side effect. So, we took the plunge. He's in fifth grade now and one of the top kids in his grade. Reads like crazy. Life is not struggle-free by any means.... he has some social issues, but.... he's able to learn and that's huge.

One thing that might make you all feel better about medicating your kids (well, two things). The first is that there are studies showing that kids who are medicated tend to "self-medicate" (with drug/alcohol abuse) as adults less than kids who were not medicated. And secondly, as the kids grow and become adults, they have found that 1/3 need to stay on some sort of medication, 1/3 medicate when necessary (for intense work periods, say), and 1/3 are off medication completely.

Definitely take the step to have your son evaluated by someone with experience in this area. Good luck.
 
Oh my gosh, Workinprogress! What parallell lives!! What you went through is EXACTLY what my son is going through as well. To the letter!! Even the age and the marriage stuff. My son is seven. How interesting that it seems to be the magical age for diagnosis.

I will definitely research the heck out of this and am not afraid to go to different doctors. I've gone through about 10 different allergists before I found one I liked and who wasn't just jumping on the drug bandwagon.

Thank you, thank you!!

Pam
 
Pam, hugs to you, you are going through a lot these days.

Both my kids have ADD (plus a host of other diagnoses) so I have Been There and Done That.

Please feel free to PM me if you like for details and support.

How old is your son? (Forgive me if you mentioned it elsewhere).

Take the time to pursue all your options. Proceed carefully and thoroughly with the diagnosis step. Many kids with ADD have other diagnoses as well - executive function disorders, mood issues, etc. I don't say this to scare you but more to gently warn you against tunnel vision.

The appropriate next step (IMO) is to ask for a referral from your family doc to someone who can perform neuropsychological testing. This can be a child psychiatrist but there are other specialties who can do the testing.

This step is important. If you have good insurance, use it. If you can come up with the extra money I'd strongly advise having and Independent Educational Evaluation done at the same time.

Usually neuropsych testing IS covered by the educational eval ISN'T.

The testing will give you a clear picture of what is going on with your son, if he genuinely HAS ADD or if he has something else, or something in addition.

There's no point medicating for ADD if that isn't his issue. There are so many different options for medication now.

I was a full-on home-birthing, breast-feeding, hairy-legged, Birkenstock-wearing, cloth-diapering hippie.

Then my kids happened and I had to wake up and smell the coffee. I didn't want any kind of unnatural anything to touch them. But, in all honesty, when a kid with ADD takes the appropriate medication the difference is like night and day. It is a chemical imbalance (among other things) that is truly helped by medication.

You are not a failure if your child needs medicine. Medicine will not cure ADD. But it can make life just a little bit less hard.

Again, feel free to contact me - this is one thing I live and breathe night and day - and I know all about having to do it alone or "alone" as the case may be.

Take care.

ETA - We're simul-posting! Your son is seven, that's good. Young is good!
 
As soon as my youngest son started kindergarten I started getting calls from the school about his behavior. It wasnt anything really bad - just not being able to stay on task, bugging other kids. But between that and some issues starting to happen at daycare - that I started looking into the ADHD. After some testing we did find that he was showing all the signs.

The LAST thing I wanted to do was medicate my child - but started him on Ritalin. Like the previous posted - after going through a couple of options - found that concerta worked the best. Especially with the 12 hour option - so he didnt have to take any meds at school. He was on the meds until about 5th grade and has been off them since. On days where he forgot his medicine - he got in trouble at school. Every time!

One doctor put a great perspective on it for me - She said - Ritalin/Concerta/Adderall is essentially speed. ADHD is a chemical imbalance. If my son takes this 'speed' it calms him down and he is able to focus and do much better in school. If I take it - it is 'speed' and I cant stop and cant sit down. Since it is non-addictive and in and out of your system - she told me to take one (one of the 4 hour ones) just to see what it does to a non-ADHD person. And she is right! But boy was my garage clean that day!! LOL...


ETA - He is 15 now and doing great!

I just talked with him a few weeks ago about it and if he notices issues still. He still says he has some days where he sees the ADHD surface - but he is in control of his actions now and no longer gets in trouble because of it.

It is a tough choice - but it was the right choice for him. He has had a much more successful time at school and with his friends by taking the medicine. I wouldnt go back and change that decision at all. He was struggling and my pride is not worth his struggle.
 
Hi again,

Just to add to the fun of life and something I didn't exactly mention in my 'he just doesn't get it' email is that I believe and it has been suggested by the school counselor and teachers that my son may have ADHD. I'm taking him to our D.O. today for the next level of evaluation. A while back a pediatrician had said he shows signs of it and suggested seeing a child psychiatrist, which seemed too weird for me and the reality of it broke my heart. So, I didn't do it. I think I may have no choice now. :(

So, let's say he is diagnosed, what next?? Who has had experience with this either directly or indirectly? Medicating my child is not a pretty option. Who can shed light on this?

Thanks again.
Pam

Pam my son was diagnoised on the autism spectrum when he was 2. We were also told when he was 4 that he exhibited the signs of ADHD. He saw a developmental pediatrician 4 different ones actually and they all confirmed the diagnosis.
My best advice is to educate yourself. Read, research, . . . talk to Dr.'s. Take him to Dr.'s. I know the thought of medication has such a terrible label to it but if your son needed glasses to see you would get him glasses. If he needed medication to function in class he should have all the help he can get to be sucessful.
Hang in there. It is hard but as you can see from all the posts you are not alone. Hugs to you.
 
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I was diagnosed w/ ADHD as an adult, but I did have it as a child. My mother never pursued it actively b/c I did ok in school and functioned normally. However, in my teens I developed a lot of bad tendencies (especially addictions) and my self-esteem was in the tank. I was put on medicine @ 21 and it was like night and day. I cannot explain the difference it made in all areas of my life. I stopped taking the medications a few years ago and have been doing pretty well (exercise helps this), but have noticed lately that medication may be something I need to reconsider. There are a plethora of options and the information can be a bit daunting, so I agree w/ what others have said about research. You can do questionaires to decide what area your child may need help in (impulsivity, concentration, forgetfulness, etc...), and then go from there. Medication may be a great way to get started and then therapy can be done to help cope. There is a great book called "Driven to Distraction" that may offer some insight. It was written by a doctor that has ADHD.
Good luck :)
 
As another mom living the life w/ a child w/ ADHD (and Aspergers, Anxiety, Executive Function Disorder and on and on), you've gotten great advice already.

Have your child fully tested by the best resources you can find (and afford) ASAP. Knowing the full picture makes a HUGE difference in determining how to help your child succeed. As Suzanne pointed out, ADHD often co-exists w/ other significant issues that affect learning, socialization, physical coordination, life skill development, emotional control, etc. Without the full picture, you're just shooting in the dark, hoping to solve all his school problems by focusing on that one issue. (Suppose a child also has dyslexia or an auditory learning disorder--ADHD treatment won't do anything to help those issues.)

Frankly, ADHD is the least of my DS's problems. I was initially 100% opposed to medication for him, but I came to understand that without it, he couldn't do what was required of him (sit still, follow directions, stay focused, work neatly, not bother others, listen quietly, pay attention). It would be like telling a nearsighted child to "try harder to see the board" or telling someone w/ a broken leg to "try harder to run". It's not a matter of lack of effort or laziness--it's a physical difference in how their brain is wired!!

W/ medication, DS is an A student who will be taking honors classes in Algebra and Science next year (in 8th grade). He helps other students w/ their homework and he won't do anything else after school until his own homework is done. Socially, he still has a ton of issues, but at least he can look at his academic success and be proud of what's he's done--on his own.

We still monitor his medicine (dosage, type, duration), and make changes from time to time based on what we see and find out about from the school. So, if one medication works for awhile, you may find over time that side effects develop or the dosage needs tweaking (up or down) so you do need to be vigilant.

ITA that kids who need help for learning disorders but don't get any are most often the ones who develop significant problems in adolescence. They turn to drugs, alcohol, sex, criminal behavior to self medicate because they aren't able to succeed in school, are misunderstood at home, have trouble keeping friends, you name it.

Some teachers are better than others in understanding how learning issues affect classroom behavior & performance. I've had some utter gems and some absolute horror shows. Don't be afraid to push for what your son needs and if he's not getting it, speak up as often and loudly as you have to.

Also, LDs (learning disorders) are most often discovered whenever there's a big leap in expectations for independent work from children (eg. 3rd grade, middle school). That's why there are some "magic ages" (your phrase) for these diagnoses.

Finally, I know you are seriously stressing this diagnosis. Please, take a few hours and look online for ADHD support forums and information. There is a wealth of information out there by knowledgeable people who have walked in your shoes. Sadly, there is also a lot of misinformation by others who like to take advantage of parents and promise quick cures & easy natural solutions. Having tried more than a few, I can tell you to save your $$ for actual doctors, psychiatrists, neurologists, psychologists, etc.

Good luck and (((((((hugs))))))))).
 
Some teachers are better than others in understanding how learning issues affect classroom behavior & performance. I've had some utter gems and some absolute horror shows. Don't be afraid to push for what your son needs and if he's not getting it, speak up as often and loudly as you have to.

Also, LDs (learning disorders) are most often discovered whenever there's a big leap in expectations for independent work from children (eg. 3rd grade, middle school). That's why there are some "magic ages" (your phrase) for these diagnoses.

Finally, I know you are seriously stressing this diagnosis. Please, take a few hours and look online for ADHD support forums and information. There is a wealth of information out there by knowledgeable people who have walked in your shoes. Sadly, there is also a lot of misinformation by others who like to take advantage of parents and promise quick cures & easy natural solutions. Having tried more than a few, I can tell you to save your $$ for actual doctors, psychiatrists, neurologists, psychologists, etc.

Good luck and (((((((hugs))))))))).

Joan WOW what fantastic advice. Pam print out her post listen to Joan! Everything she said is 110% true.
Early detection and treatment is absolutely necessary.
We spent a small fortune on Dr.'s but it was worth every single penny.
Medication may be frustrating till you find the right dosage and brand but it can truly make a difference.
 
Suzanne, Joan and all you other amazing ladies! First of all, bless all of your hearts for having the courage to confront these issues head-on and finding the right solutions! I love the idea of an ADHD support group. After hearing from soo many great people and hearing how many families struggle with similar problems. I don't feel like such a loser of a parent, questioning what I did wrong, could have done differently, etc..

Thank you, thank you, thank you for all of your support and honesty. You are the most wonderful group of people!!

(((((HUGS)))))

Pam
 
ADHD is not the end of the world. My daughter was diagnosed with ADHD and learning abilities in 6th grade and refused any meds. Junior high was rough, Freshman year in high school was rough, but we have worked very, very hard, and now as a junior, for the first time ever, she is on honor roll. She also has been the lead in the fall play(memorization work is difficult because of her LD, so she has to work twice as hard), and has a lead in the spring musical. She has a form that is not hyperactive, but more dreamy. Learn about the different ways it manifest.

My 22 year old boy has been struggling for years in college, and I have always suspected it with him. It has lead to a pretty significant depression, but he has finally decided to get help and tested. There are good books out there, I have given him several to help with this.

Know it is not the end of the world, these kids have many, many gifts. I have had to spend an enormous amount of time tutoring my daughter, my son is extremely bright, so the struggles did not hit until college. I also was in constant contact with her teachers, being their ally, not their enemy, which made them really want to help her. She also had an eye tracking issue in earlier grades, which made reading difficult, so it hid some of the other things.

There can be a lot of layers to things, so be patient, and work it through.

Also, some things you mentioned in the other post made me think ADHD in you. It is hereditary, so as you read the material, you may discover things about yourself. I always thought I was ADHD until I read the material, and my husband and I discovered.....it was him.
 
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Hi Suzanne,

I'd love to hear more about your experience. Please feel free to post a private message whenever you have a moment.

Thanks!
Pam
 
Hi Dorothy,

I'm quite sure I had ADHD as a child and probably still do to a degree as an adult. It seems to have served me in my career in Human Resources and Recruiting! I have no doubt that he would have inherited it from me... gee, thanks mom!! ;-)

I'm continuing to research it and can't thank you all enough for the feedback and support!

Pam
 
Pam, if you had ADHD, you still have ADHD. You may have developed coping skills, but they have done brain scans on individuals with ADHD and the brain is actually physically different.

You and your son are unique and have gifts. Enjoy them!
 
I agree with Dorothy on this one. If you think you had it as a kid, you a. probably did and b. most likely still do.

That's the boat I'm in now. As I watch my kids struggle and look around and see my parents and how they did or didn't cope with the real world and then I look at myself and how I do or do not cope......I say ooooooohhhhh, now things begin to make sense.

I'm PM-ing you as well.
 

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