Lupus
- Thread starter Loriv
- Start date
My daughter is 33, has had lupus since she was 16, and has just gotten engaged. At one point she was adverse to having children, but now she is thinking more positively about it. She checked with her latest rheumatologist, and he agreed with her last one. They both felt that the important thing is that she needs to make sure she is monitored closely throughout the pregnancy. I would call the lupus society and ask them if there is anyone you can talk to.
There has been so much progress in controlling lupus that the horror stories of the past are no longer the norm. My DD has been in remission for the last 6 years.
There has been so much progress in controlling lupus that the horror stories of the past are no longer the norm. My DD has been in remission for the last 6 years.
Hi!
As long as you are under physician's supervision the chances of you having a normal pregnancy with less complication increases.
There are so many articles published regarding this subject and many studies are being done. For example take a look at this article : http://www.hamline.edu/~lupus/articles/Pregnancy_in_Lupus.html
Know that you are not alone and that knowledge is power. Make sure you follow up with your doc. regularly.
All the best.
As long as you are under physician's supervision the chances of you having a normal pregnancy with less complication increases.
There are so many articles published regarding this subject and many studies are being done. For example take a look at this article : http://www.hamline.edu/~lupus/articles/Pregnancy_in_Lupus.html
Know that you are not alone and that knowledge is power. Make sure you follow up with your doc. regularly.
All the best.
Here's a fellow lupian!
Every case is different, so what one goes through doesn't necessarily mean it applies to all. That is one reason lupus is so hard to diagnose. Do you have SLE (connective tissue or discoid (skin)lupus?
I have SLE that for years stayed in my knees. I would have to have knee taps on alternate legs every two or three months. It is more in my brain now, which makes me have lupus headaches that mimic migraines. Sle will travel to anyplace that has connective tissue. While enroute to my brain, it went through my right eye and scratched it. More serious lupus will affect the organs. The doctors will usually put the patient on steriods during this stage.
You can get lots of info from the Lupus foundation and by using your search engine on the internet. Some of the info is scarey and depressing. Not that I'm in denial, but I choose to have a positive attitude and I've been coping with this for 19 years now. Positive attitudes helps to relieve stress.
One thing I found out the hard way is, lupians cannot take estrogen or hormones. This will cause swelling in your joints and also calcium deposits in the breasts that give your mammogram readers a hard time. While on estrogen I was having to have my breasts drained as well UNTIL the New England Medical Journal came out with the info that I had already begun to figure out, lupians shouldn't take hormones. This was in 1994 that that info came out.
Lupus makes you tired. And yet exercise is the ticket for many reasons. Not only do you release toxins but you get those nice endorphins to help with pain. While I will force myself to do my workouts, there are days when I can do nothing else. (who needs to clean house everyday, anyway right?
While there is now more things I can't do than I can do, I find it most helpful to concentrate and to be thankful for the things I can. I guess this could apply to everyone as that would prevent them from comparing themselves to another person...
There is no cure for lupus, however there is something experimental they are using. I haven't checked into it yet. ? It should be on their website though.
I would humbly suggest to keep a record of what causes a flare up for you. For me it is extreme stress or doing something stupid like putting MIS and MIC back to back on a good day.
And as I stated above, mine was also triggered by chemical reaction to hormones.
I don't have an answer about the liklihood of your passing it on to your baby, although Lupus is hereditary, my family on my Dad's side have it...none on my Mom's. I don't know why that is??
Do your homework, ask questions (which is what you are already doing) and think happy thoughts.
Wanda who is rowing in the same canoe....
Every case is different, so what one goes through doesn't necessarily mean it applies to all. That is one reason lupus is so hard to diagnose. Do you have SLE (connective tissue or discoid (skin)lupus?
I have SLE that for years stayed in my knees. I would have to have knee taps on alternate legs every two or three months. It is more in my brain now, which makes me have lupus headaches that mimic migraines. Sle will travel to anyplace that has connective tissue. While enroute to my brain, it went through my right eye and scratched it. More serious lupus will affect the organs. The doctors will usually put the patient on steriods during this stage.
You can get lots of info from the Lupus foundation and by using your search engine on the internet. Some of the info is scarey and depressing. Not that I'm in denial, but I choose to have a positive attitude and I've been coping with this for 19 years now. Positive attitudes helps to relieve stress.
One thing I found out the hard way is, lupians cannot take estrogen or hormones. This will cause swelling in your joints and also calcium deposits in the breasts that give your mammogram readers a hard time. While on estrogen I was having to have my breasts drained as well UNTIL the New England Medical Journal came out with the info that I had already begun to figure out, lupians shouldn't take hormones. This was in 1994 that that info came out.
Lupus makes you tired. And yet exercise is the ticket for many reasons. Not only do you release toxins but you get those nice endorphins to help with pain. While I will force myself to do my workouts, there are days when I can do nothing else. (who needs to clean house everyday, anyway right?
While there is now more things I can't do than I can do, I find it most helpful to concentrate and to be thankful for the things I can. I guess this could apply to everyone as that would prevent them from comparing themselves to another person...
There is no cure for lupus, however there is something experimental they are using. I haven't checked into it yet. ? It should be on their website though.
I would humbly suggest to keep a record of what causes a flare up for you. For me it is extreme stress or doing something stupid like putting MIS and MIC back to back on a good day.
And as I stated above, mine was also triggered by chemical reaction to hormones.
I don't have an answer about the liklihood of your passing it on to your baby, although Lupus is hereditary, my family on my Dad's side have it...none on my Mom's. I don't know why that is??
Do your homework, ask questions (which is what you are already doing) and think happy thoughts.
Wanda who is rowing in the same canoe....