I would try and find a good chiropractor. I know you are not in Indiana, but if you don't mind calling an Indiana chiropractor for a referral, then call Gallagher Chiropractic at 317-571-1480. Michael Gallagher is my chiro and he might be associated with some organizations that he might be able to point you to for guidance.
You could also try a naturopath or acupuncturist. These people can work miracles. I know, because an acupuncturist was able to completely alleviate my monthly menstrual cramps, which had become debilitating and had lasted for several years.
As a sidenote, I am soooo disgusted with this country's medical professionals. Most of them simply want to treat the symptoms (rather than the problem), or do nothing at all, as in your case.
I sure hope you find a doctor who can (and is willing to) help. Doctors like this seem to be in short supply in the United States.