Anybody here have MS?

Fitquest

Active Member
Hi,
I was curious to see if anyone on this site has Multiple Sclerosis? I found out almost exactly a year ago that I had it and I want and am trying to doing everything I can exercise wise to strengthen my body. So far so good!

Roylene
 
I dont have it but my neighbor across the street has it. She takes a special medicine that is delivered to her house via Federal Express and she injects it herself. She used to work full time but found she was too tired and started working part time. I would have never known that she had it if she had not told me. Whenever I ask her how she is doing, she always gives me a good report. She is a lovely person and feel we are lucky to have her and her husband as our meighbors.



Madonna
 
I inject every week too. Unless you have a lot of residual disability, people usually can't tell you have it. Which, that actually is a plus. I've been doing pretty well so far.

Roylene
 
I am shocked at how many women I have heard about that have been diagnosed with MS. It is a big problem in my region...Central Pennsylvania. They are apparently doing some research to see if there is anything in our water (alot of people have well water) that could be the culprit. I have a neighbor that has MS. She is confined to a wheelchair....sorry to tell you that, but, I think alot of it is state of mind, determination and will power. You will fight this MS and not it let it beat you. If you have that state of mind, I think you are going to remain healthy for a very long time. I keep hearing that scientist are very close to finding a cure for this decease. I pray for you and for all that suffer from this, that they do soon.

Kim
 
>She is confined to a
>wheelchair....sorry to tell you that, but, I think alot of it
>is state of mind, determination and will power. You will
>fight this MS and not it let it beat you. If you have that
>state of mind, I think you are going to remain healthy for a
>very long time. >Kim

Kim,
I don't want to get flamed here, but this subject is very personal to me. My boyfriend actually has the progressive type of MS. No amount of "state of mind, determination and will power" will make him better. He is the strongest person I know and fights this disease with all his "willpower" and "state of mind" as you put it.
But, unfortunately, there is not enough willpower that will keep out of a wheelchair in the future. It's a fact of life with MS.
He is on too many medications to name, and it kills me just to watch him try to make him self a sandwich (which usually takes him 30 min.)
So please, a statement like that is very ignorant, and very disrespectful to him and to the other thousands of people that has MS.

Oh, and by the way, MS is NOT caused by well water!

Terri
 
Terri,
I agree so heartily with your post. No flames here!
I do want to add that it is not the same for each person. A person who is lucky(yes that is what it is just Luck) enough to have a mild case can live a wheelchair free life and be totally undetectable to everyone unless they tell them.
I feel so bad for your boyfriend! He sounds like such a strong person. You are right it is demeaning to people who have a disease that is biologic not a mental disability. Ignorance can hurt so bad. But for fitquest and others, a wheelchair is not always inevitable if your disease is mild.
 
>I am shocked at how many women I have heard about that have
>been diagnosed with MS. It is a big problem in my
>region...Central Pennsylvania. They are apparently doing some
>research to see if there is anything in our water (alot of
>people have well water) that could be the culprit. I have a
>neighbor that has MS. She is confined to a
>wheelchair....sorry to tell you that, but, I think alot of it
>is state of mind, determination and will power. You will
>fight this MS and not it let it beat you. If you have that
>state of mind, I think you are going to remain healthy for a
>very long time. I keep hearing that scientist are very close
>to finding a cure for this decease. I pray for you and for
>all that suffer from this, that they do soon.
>
>Kim
Kim,
I have to add that I suppose that anything is possible(being nice), but I am not aware of MS being related to water supplies or epidemics.
Hmmm, Central PA. Who is the doctor or hospital investigating? I am really curious!
"she is confined to a wheelchair... sorry to tell you that". I am so offended that you would tell that inside info to someone with a disease!! Sorry, this IS personal.
You probably did not mean things the way that it sounded to me. Hit the e-mail button if you have a problem.
Sorry to everone else.
 
Sorry to get everyone riled up. I didn't mean to. I just wanted to know if anyone had MS here. I know that it can get bad and some end up in a wheelchair and really disabled. I'm doing pretty well so far and am keeping my hopes up as this is such an unpredictible disease. No one knows what the future holds. That is the scary part. But, I'm not going to worry about what may or may not happen. That won't get me anywhere. Sorry if I upset anyone.;(
 

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