update from premenopause poster child

AKirkland

Cathlete
Hey ladies,

For those of you who are following my hormonal trials and tribulations, just wanted to let you know I go back to the GYN on Monday for lab results and, hopefully, some answers!

*** please, please, please give me the low dose bc pills! ***

In the meantime, I've continued to use the OTC natural progesterone cream as it does indeed regulate my cycle and helps with the breast tenderness. On the other hand, it hasn't made a difference in the mood swings, irritability or insomnia. The night sweats have stopped, but I still get hot at times, and for some unknown reason, am freezing when I first go to bed.

Some of you have emailed me privately, and I've really enjoyed talking to you. If anyone else has questions or experiences they'd like to share, please feel free to get in touch.

I'll post another update Monday afternoon...

Angela
 
Angela:

I've been using the cream also, and I find it throws my cycle off, makes it even longer, up to 40 days long. Which translates into more days in the bloated/pms zone. Nice. I've about had enough. But then, you knew that! Thanks for your email, I'll be avidly awaiting news.....

Your hormonally desperate pal,

Clare
 
Interesting Angela. I would like to know if the low dose bc pills have helped you in the past. Are these completely progesterone. I ask this because I believe after much research this could have helped with my overactive milk production post pregnancy, and also with the "getting cold", moody and just plain sick. I think it was all a hormonal imbalance that could have been remedied possibly with a progesterone pill. I too would go through the freezing cold syndrome and then return to normal - it was very up and down. What kind of tests did they run on you? The natural cream helped me, but like you - not enough. I ended up smearing more and more and more on and my body seemed to adapt to it and the problem would return. Keep us posted!!! Thanks

Briee
 
Angela:

guess what? Even though I live in a town and work for a university whose health system ranks 5th in the nation, I am told by my PCP, by lewtter today, that she cannot get me an appointment with a gynecologist until JUNE!!!!

Can you believe it? I am FURIOUS. I have also been crying for an hour over it because I just can't take any more. I can't go through this til June, I just can't.

Clare
 
Hi, Briee

No, the LD BC pills include estrogen as well as a progestin. I believe what you're refering to is something called the mini-pill which includes only a progestin.
 
saw the doctor today

I know y'all have been waiting for the big update!

They took blood when I went in two weeks ago to test the various hormone levels. According to the doc, my estrogen was low, but not abnormal. (I think low estrogen is probably not unusual at all for an ecto...) He seemed to think everything looked ok. He said there was no indication from the bloodwork that I was going into early menopause... kinda shrugged it off.

I brought up the big increase in sex drive again and he said there was nothing in the bloodwork to explain it. He kinda laughed about it again and said it was unusual but not abnormal.

He's putting me on Yasmin - a low dose bc pill. It contains 3.0 mg of drospirenone and .03 mg of ethinyl estradiol. This is a monophasic pill. Anyone have experience with it? I won't be able to start the pill, however, until I've had my next period, and that's a couple of weeks away. I'm still using the OTC progesterone cream until then, although I've cut back a little on the amount I've applied.

Clare, can't you switch docs or see someone else in the same practice? No one should have to suffer for months on end.

Angela
 
RE: saw the doctor today

Angela,

I hope the Yasmin works for you. I haven't ever taken it so I won't be of any help in that regard. Keep us posted.
 
RE: saw the doctor today

Thanks for the info Candi.

Angela, you mentioned that low estrogen is pretty normal for an ecto...is there a medical explanation for this? I am very curious now.

Also....they took my hormone levels when I was nursing and said that they were normal...but we all know now that they were NOT NORMAL. The one doctor told me that the BC pill wouldn't help my problems at all, but this time around I took the bc pill (perscribed by a different doctor who did realize it was a problem no matter what my levels looked like) and it made an INCREDIBLE DIFFERENCE in my whole system. I took the pill to dry up my milk supply after the baby was born (and it did), but it also made all the difference in the world in my whole "emotional makeup", cold spells, etc. I didn't want to be on artificial hormones for long so I went off them and boy did I take an emotional drop about 3-4 days after I went off them. I cried for days.

I'm rambling....please keep updating us on how you're feeling.

Briee
 
RE: saw the doctor today

Briee,

Isn't it interesting about the tests. I read that due to the fluctuations in hormones, that the testing can be misleading. Even the FSH can be off on any given day.

The proof is how you feel after being on the pills. I kid you not, only a couple of days after being on them I felt so much better. I'm not 100% my old self, but at least 85%.

Also, the week before my period when the estrogen dose is cut in half from the first three weeks, I start experiencing (but to a much lesser degree) problems with memory loss, sleeplessness, anxiety and vaginal dryness. As soon as I start the three week dosage, I'm feeling better again.

It doesn't hurt to go on them for a few days and see what happens.
 
RE: saw the doctor today

Briee:

would you mind expanding on what you meant when you said: "they took my hormone levels when I was nursing and said that they were normal...but we all know now that they were NOT NORMAL. The one doctor told me that the BC pill wouldn't help my problems at all, but this time around I took the bc pill (perscribed by a different doctor who did realize it was a problem no matter what my levels looked like) and it made an INCREDIBLE DIFFERENCE in my whole system. " ?

What was going on with you?

I ask simply becuse I'm desperate for information.

I am deeply sceptical of this blanket statement of "normal" delivered by doctors, and then shrugged off by them when women are experiencing real symptoms NOW and it is not all in your head.

Remember ladies, as ectos, we have lower levels of estrogen in our bodies to begin with than more well endowed ladies with a higher body fat percentage. Fact. So, a drop in levels could have a significant effect and be mighty unpleasant. Then some women are particularly sensitive to estrogen, either owered or increased amounts of it.

Angela:

Good luck wth the yasmin. I wish you well. Let us know how you get on with it OK? This is one bc pill I have on my "accpetable for trial" list.

Clare
 
RE: saw the doctor today

Clare,

I'm sorry I couldn't remember. Have you tried the LD BC pill yet?
 
RE: saw the doctor today

Clare....I hope this doesn't get too long. My problem is going to be completely unique. But, I think hormonal imbalances were the cause, but I couldn't find a doctor who cared to deal with my problem until this past year.

I experienced severe problems with breast infections when I was nursing baby number 3,4, and 5. (and I nursed them for 2 1/2 years each). I would get infections like 2-3 per week at least (like a severe flu, high fever, shaking, etc). Numerous doctors were consulted and none of them could find the problem. I produced LOADS of milk and this contributed to the problem. Along with the infections came severe temperature shifts in my system. I would be freezing and shaking one minute and after a few hours the I would feel the warmth return. Someone said why didn't you wean them...problem was I couldn't get the milk to stop. If I didn't pump it out I would swell up literally like a football. The only way the milk would decrease was when I got pregnant again. Somewhere in the 3-4 months it was like a switch turned off the milk (that's when the progesterone/estrogen levels really kick in). After baby number 5, a very sweet physician's assistant finally listened to my problem and helped me wean the baby (#5) around 8 months of age by putting me on a very controversial cancer drug which blocked the persception of prolactin to my brain. After not nursing and being on this for 2 months, I quit taking it...only to become engorged again. I finally dried up, but it took about 3 months.

I had asked our regular ob/gyn about whether going on the pill would help me with the hormone situation (make my milk decrease)...after all my milk would drop when I was 3-4 months pregnant. She shrugged it off and said it wouldn't make a difference. They tested my hormone levels to see if they were irregular and they said "all was normal - for a nursing mom".

Well....this pregnancy (#6) the sweet physician's assistant had me apply a bc patch right after the baby came out to see if this would make my milk decrease. Miracle of all miracles.....it did. I completely dried up and felt great post partum.....until I took the patch off. My milk came back in and the INCREDIBLE MOOD CHANGE was more dramatic than words can describe. I am not a moody person, I have no idea what PMS is like (or I've never noticed), but I now know the power of hormones just by this experience post pregnancy.

Ladies....hormones control everything in your body. The problem is finding someone who will work with you to find the right balance. I do not like taking artificial hormones, but there may be reasons for them and believe me....they alter moods, temperature changes, EVERYTHING. I don't care if they think the levels are normal. Seek someone out who will work with you. I want to stress that I'm not advocating taking hormones...I would try every natural possible method to avoid them. Also be VERY aware that dairy and meat products are filled with artificial hormones which most likely added to the problem to begin with. If possible find organic sources of meat and dairy.

There's my speech. I am so interested to know that ecto's have low levels of estrogen. When I was having these infections I weighed 97 pounds and I'm 5'3. No one has ever told me that ecto's are more prone to this - that's why I wondered if there was any medical evidence for this - or is this another one of those things that doctors won't discuss. Thanks for listening guys (gals ;) ).

Briee
 
RE: saw the doctor today

Hi Candi:

I tried one and it was pretty awful. I didn't want to just try them all out one by one and go through all that feeling awful repeatedly until I found the right one, so I asked my PCP just to refer me to a gyne specialist. Turns out, the guy's so damn special, no one can get to see him! I am going to go back to my PCP and tell her I cannot wait til June, I will have killed someone by then, and see if I can make her jump into action on my behalf. Hopefully, she'll recognize a crazed woman when she sees one!

Clare
 
RE: saw the doctor today

Briee and everyone interested in the topic:

gosh I'm sorry! I hadn't realized what I was asking you to report! You were put through the wringer completely with your milk production problems. I'd never heard such a tale. I used to get infected ducts while nursing. It's a god-awful pain. I am glad you don't have to go through that again.

You are so right on! I agree totally. Hormones do control everything and there has to be someone out there who will listen. I am so convinced of this, I shall continue my fight. I am nothing if not determined whenever someone in the medical profession tries to shrug me off.

I found this great book in Borders today:

"SCREAMING TO BE HEARD: HORMONE CONNECTIONS WOMEN SUSPECT & DOCTORS STILL IGNORE" by Elizabeth Lee Vilet, MD.

It sells hardback for $29.95, so I'm gettting it from the library. The title alone sounds soooooo promising!

Clare
 
RE: saw the doctor today

Briee, there's a lot of information out there about the link between body fat and estrogen levels. Here's a typical quote:

If body fat levels are too low, you produce less estrogen. If body fat levels are too high, you produce more estrogen. Both of these instances can throw your cycle out of balance and interfere with regular ovulation.

When I was very ill, my weight dropped to around 90 pounds and I didn't have a period for several months.
 
RE: saw the doctor today

Clare,

I'm going to share something with you guys (just promise not to tell anyone). I'm sharing this just to prove I know how you're feeling. One experience before I went on the LD BC pill.

I walk my two dogs (my girls) almost every evening. They absolutely love it and it helps me unwind from my day. Well, Florida has a leash law which means dogs are not allowed to run free. Pretty damn good law, I think, cause even though my girls are sweeties, they take exception to other dogs running up to us. Meaning, they are extremely protective of me and there will most certainly be a fight. I don't care how big or small the other dog is.

To get a clear picture of this I have to set the scene for you. I am 5 feet 0 inches tall, approximately 120 lbs (on a good day) and 49 years old. My dogs are a chow/sheperd mix, approximately 45 lbs each. Anyway, we're walking along and up runs this Golden Retriever who has got to be about 90 lbs. Poor thing just wanted to play, but my girls attack this big guy. I'm holding on to them for dear life (and screaming) while their owner is just standing accross the street watching. The owner is a teenage guy, probably about 18 years old, 6 foot, 160 lbs. Well he starts yelling at me cause I'm yelling at his dog. But does he come over and try to get his dog, NO. In the meantime, my dogs are giving the Retriever a really hard time.

Then it happened. I felt my blood pressure go up and I'm telling you if I had a weapon, the kid would be toast. I start cursing at the kid, he's cursing at me back, the dogs are fighting, and at this point, I'm almost in the middle of them. I will not share my choice of curse words with you because I'm too embarassed. Finally, the kid's Mom comes out, starts yelling at the kid, he's still cursing me out and starts heading for the dog. I think he's going to hit me, so I'm ready for a fight. And I'm telling you, at that moment, the way I was feeling, I would have beat him up. It all ended with apologies, but you get the picture. The thing is, if you know me, you know I try to get along with people. It was shortly after this experience I managed to get my situation under control.

The moral is: OUT OF CONTROL HORMONES ARE NOT A GOOD THING!

When I got home I cried as I told my husband what happened. He gave me the biggest hug. We laughed about it afterwards but I'm still embarassed about my behavior.
 
RE: saw the doctor today

Hey Candi:

thanks for the story. I understand. I have felt wildly out of control recently. Mainly it is turned inwards with me, resulting in a shutting away, turning away from everyone, desire to do damage to myself. Which I don't do, but the desire always surges in me.

It's so complicated because with me all these hormonal shifts start as physical symptoms, but they lead to panic attacks when I got so worried about all the palptiations, chronic tiredness, muscle soreness, dizziness, etc, and thought I was heading for a heart attack. The physical symptoms lead to anxiety, lead to panic. I was so patronized by a doctor at the hospital who diagnosed me with panic disorder without even talking to or looking at me, or even considering my age, sex and the possibility of a hormonal basis. Even my PCP, a woman, who did suggest it, can still only think in tunnel vision that all I need to do is bow to her greater wisdom and accept that I am a basket case who needs to be in therapy, i.e. it is all in my head. Bulls**t.

I think I have to switch PCP's and start again, because this PCP only ever says the same thing to me: you need to go to the anxiety clinic. She doesn't listen to me. I really feel I do not. I never had trouble with this until my PMS went to PMDD and then all the hormonal fluctuations started a whole line of physical symptoms first. It is phsyiological. Hormones affect the brain and mood, and for women with fluctuating hormones, this was never more true.

Right, now I am so angry over this, I am off now to take action. I need to empower myself.

Thanks Candi for your constant prompting, and Briee for her empowering words, and Vickie and Marie from their other encourageing post, so similar to this one.

Clare
 

Our Newsletter

Get awesome content delivered straight to your inbox.

Top